Table 2.

Daily time spent on transfusion-dependent β-thalassemia management activities: comparison between transfusion and non-transfusion days

Variable	Activity
	Arranging childcare	Making appointments for transfusion	Blood type- or cross-matching	Preparing and taking chelators	Organizing medicines	Organizing insurance payments	Organizing time off	Traveling from transfusion	Traveling to transfusion	Waiting for transfusion	Transfusion duration	Total
Transfusion days
Respondents, n	3	35	11	40	32	2	11	58	58	58	58	60
Daily time spent, mina
Median	72	10	45	10	15	152	20	60	60	30	300	494
Range	15–188	0–780	0–200	0–960	0–360	5–300	3–300	0–960	0–1200	0–720	0–1140	0–1410
Mean	83	34	62	97	35	152	45	69	78	67	352	592
Standard deviation	64	108	61	242	62	209	73	75	98	82	237	349
Non-transfusion days
Respondents, n	13	46	38	53	52	3	24	–	–	–	–	61
Daily time spent, mina
Median	30	15	98	10	20	35	20	–	–	–	–	15
Range	0–600	0–630	0–900	0–1140	0–1020	10–60	5–480	–	–	–	–	0–1140
Mean	99	30	105	84	37	39	44	–	–	–	–	91
Standard deviation	142	58	99	225	68	19	69	–	–	–	–	221

^aTime for each activity includes only participants who reported a time value for that activity; total time includes all participants who reported a time value for any activity