Table 3.

Daily time spent on transfusion-dependent β-thalassemia management activities: non-transfusion days, comparison between infused and oral chelation

Variable	Activity
	Arranging childcare	Making appointments for transfusion	Blood type- or cross-matching	Preparing and taking chelators	Organizing medicines	Organizing insurance payments	Organizing time off	Total
Infused chelation
Respondents, n	2	11	5	11	11	0	7	11
Daily time spent, mina
Median	120	10	120	75	20	–	30	80
Range	60–240	3–70	3–215	0–1140	3–300	–	10–120	0–1140
Mean	129	18	118	350	52	–	40	336
Standard deviation	73	20	58	383	64	–	28	377
Oral chelation
Respondents, n	7	24	23	29	30	3	12	36
Daily time spent, mina
Median	30	15	120	5	20	35	20	10
Range	0–240	0–630	2–900	0–600	0–1020	10–60	5–480	0–722
Mean	41	34	118	11	36	39	42	25
Standard deviation	54	69	111	21	76	19	76	49

^aTime for each activity includes only participants who reported a time value for that activity; total time includes all participants who reported a time value for any activity