Table 1:
Demographic characteristics and baseline assessments of the field testing participants
| Characteristics | US | DK | ||
|---|---|---|---|---|
| Total participants, n | 224 | 217 | ||
| Age in years, mean (range) | 39.6 (19-77) | 42.9 (19-72) | ||
| Sex, n (%) | ||||
| Female | 195 (87%) | 194 (91%) | ||
| Male | 29 (13%) | 20 (9%) 3 missing | ||
| Race, n (%) | ||||
| White | 159 (71%) | |||
| Asian | 3 (1%) | |||
| Black | 49 (22%) | NC | ||
| North American Indian | 0 (0%) | |||
| Hispanic/Latino | 6 (3%) | |||
| Mixed | 1 (0%) | |||
| Other | 6 (3%) | |||
| Education | ||||
| <12 years of school | 6 (3%) | 28 (13%) | ||
| High School/GED | 45 (20%) | 11 (5%) | ||
| Occupational, technical, or vocational | 20 (9%) | 50 (23%) | ||
| Some College/No Degree | 58 (26%) | 0 (0%) | ||
| Associate’s Degree | 25 (11%) | 46 (21%) | ||
| Bachelor’s Degree | 49 (22%) | 70 (33%) | ||
| Master’s Degree | 19 (8%) | 10 (5%) | ||
| Doctoral Degree | 2 (1%) | 0 (0%) 2 missing | ||
| Instrument | Mean (SD) |
Median | Mean (SD) |
Median |
| PtGA | 2.09 (1.34) |
2 | 1.96 (1.26) |
2 |
| HiSQOL, total | 28.98 (17.53) |
27 | 26.92 (17.86) |
27 |
| DLQI | 12.97 (8.33) |
12 | 11.17 (8.02) |
9 |
| NRS for pain | 3.29 (2.83) |
3 | 3.15 (2.61) |
3 |
| HADS, Anxiety subscale | 8.14 (4.91) |
8 | 7.05 (5.09) |
7 |
| HADS, Depression subscale | 6.43 (4.67) |
6 | 5.13 (2.96) |
4 |
US: United States sample, DK: Denmark sample, NC: not collected
HiSQOL: The Hidradenitis suppurativa quality of life (HiSQOL) instrument is a recently developed HS-specific health-related quality of life instrument. A higher score (maximum of 68) indicates a higher negative impact of HS. The three sub-scale are Symptoms, Psychosocial Effects, and Activities & Adaptations.
DLQI: The Dermatology Life Quality Index (DLQI) is a skin-specific health-related quality of life index. This 10-item scale has a score range from 0 (better) to 30 (worse) indicating more negative impact on quality of life.
NRS for pain: Numerical rating scale is a single item 11-point scale was used to assess severity of HS-related pain.
HADS: The Hospital Anxiety and Depression Scale is used to measure symptoms of anxiety and depression. The scale was administered to the patients in the form of 14 questions, 7 questions were dedicated to depression and anxiety respectively with scoring ranges from 0 (better) to 21 (worse) for each sub-scale.