TABLE 4.
Results of exploratory factor analysis, showing item communalities and all factor loadings >0.30
| Item | Communalities | 1 | 2 | 3 | 4 | 5 | 6 | |
|---|---|---|---|---|---|---|---|---|
| 9 | I am able to cope with having this condition in my family. | 0.806 | 0.816 | −0.336 | ||||
| 8 | I feel positive about the future. | 0.816 | 0.752 | −0.422 | ||||
| 7 | I can control how this condition affects my family. | 0.52 | 0.626 | |||||
| 16 | I can explain what the condition means to people outside my family who may need to know (e.g., teachers, social workers). | 0.718 | 0.618 | 0.533 | ||||
| 2 | I can explain what the neurodevelopmental condition means to people in my family who may need to know. | 0.818 | 0.61 | 0.641 | ||||
| 15 | I know how to get the non‐medical help I/ my family needs (e.g., educational, financial, social support). | 0.497 | 0.605 | 0.309 | ||||
| 20 | I am able to make plans for the future. | 0.65 | 0.601 | −0.374 | ||||
| 3 | I understand the impact of the condition on my child(ren)/any child I may have. | 0.561 | 0.579 | 0.469 | ||||
| 24 | I can make decisions about the condition that may change my child(ren)’s future/ the future of any child(ren) I may have. | 0.35 | 0.521 | |||||
| 11 | Having this condition in my family makes me feel anxious. | 0.809 | 0.476 | −0.493 | 0.529 | |||
| 5 | I don’t know where to go to get the medical help I/ my family need(s). | 0.475 | 0.461 | 0.333 | ||||
| 17 | I don’t know what I can do to change how this condition affects me/ my children. | 0.427 | 0.442 | 0.397 | ||||
| 1 | I am clear in my own mind why my family is having genetic testing. | 0.608 | 0.439 | 0.584 | ||||
| 4 | When I think about the condition in my family, I get upset. | 0.396 | 0.438 | −0.377 | ||||
| 6 | I can see that good things have come from having this condition in my family. | 0.225 | 0.406 | |||||
| 22 | I am powerless to do anything about this condition in my family. | 0.453 | 0.401 | 0.339 | ||||
| 19 | I am hopeful that my children can look forward to a rewarding family life. | 0.392 | 0.386 | −0.411 | ||||
| 21 | I feel guilty because I (might have) passed this condition on to my children. | 0.27 | 0.339 | |||||
| 23 | I understand what concerns brought my family to do genetics testing. | 0.421 | 0.43 | 0.435 | ||||
| 10 | I don’t know what could be gained from each of the options available to me. | 0.441 | 0.401 | 0.35 | ||||
| 12 | I don’t know if this condition could affect my other relatives (brothers, sisters, aunts, uncles, cousins). | 0.621 | 0.369 | −0.516 | 0.34 | |||
| 18 | I don’t know who else in my family might be at risk for this condition. | 0.367 | 0.47 | |||||
| 13 | In relation to the condition in my family, nothing I decide will change the future for my children/ any children I might have. | 0.223 | 0.31 | |||||
| 14 | I understand the reasons why my doctor may have to refer my family to the clinical genetics service. | 0.281 | 0.372 |