Table 1.
Study characteristics of 18 selected publications
| Publication; First author (ref) | Year pub. | Name/origin of cohort | Age at assessment (mean/range) | Study population inclusion criteria | Number of participants in eligible study and control groups | Measure used | Mode of administration of measurement |
|---|---|---|---|---|---|---|---|
| Batsvik, et al 4 | 2015 | Hauckland University Hospital, Bergen, Norway (1982‐1985) | 24 y | <1000 g or < 28 wk | 43 in 51 eligible study group; 43 in 46 eligible controls | SF‐36 | Self‐report |
| Baumann, et al 14 | 2016 | Bavarian Longitudinal Study (BLS), Germany (1985‐1986) | 26 y | <1500 g or < 32 wk | 201 in 411 eligible study group; 190 in 308 eligible controls | HUI‐3 | Self‐report and parent report |
| Bjerager, et al 15 | 1995 | State University Hospital Copenhagen, Denmark (1971‐1974) | 18‐20 y | <1500 g | 85 in 107 eligible study group; 85 in 110 eligible controls | Customised questionnaire a | Telephone interviews |
| Björqvist, et al 17 | 2017 | Helsinki Study of VLBW adults, Finland (1971‐1974) | 18‐27 y | <1500 g | 164 in 255 eligible study group; 172 in 314 eligible controls | 15‐D | Self‐report |
| Cooke 11 | 2004 | Liverpool Maternity hospital, in UK (1980‐1983) | 19‐22 y | <1500 g or < 31 wk | 79 in 138 eligible study group; 71 in 163 eligible controls | SF‐36 | Self‐report |
| Darlow, et al 3 | 2013 | 1986 cohort, (all VLBW) in New Zealand | 22‐23 y | <1500 g | 230 in 251 eligible study group; 69 controls | SF‐36 | Face‐to‐face interview |
| Dinesen & Greisen 16 | 2001 | Rigshospitalet Copenhagen, in Denmark (1980‐1982) | 18 y | <1500 g | 79 in 114 VLBW study group seen at 2yrs; 69 in 92 controls seen at 4 yrs | Customised questionnaire a | Telephone interview |
| Gaddlin, et al 12 | 2009 | South‐eastern Sweden (1987‐1988) | 20 y | <1500 g | 77 in 86 surviving study group; 69 in 86 surviving controls | SF‐36 | Self‐report (2 telephone interviews; 2 other participants had help due to disability) |
| Hack, et al 18 | 2007 | Rainbow Babies and Children's hospital, Cleveland, Ohio, USA | 20 y | <1500 g | 241 in 312 surviving study group; 232 in 363 surviving controls | Chip‐AE | Self‐report (5% read aloud due to reading difficulties) |
| Hallin & Stjernqvist 19 | 2011 | Southern Sweden (1985‐1986) | 18 y | <29 wk | 52 in 59 eligible study group and 54 in 61 eligible controls | Visual analogue scale ranging 0‐100 b | Self‐report |
| Husby, et al 6 | 2016 | St. Olavs Hospital Trondheim, in Norway (1986‐1988) | 23 y | <1500 g | 35 in 54 invited study group; 37 in 48 invited controls | SF‐36 | Self‐report |
| Lund, et al 5 | 2012 | St. Olavs Hospital Trondheim, Norway (1986‐1988) | 20 y | <1500 g | 43 in 59 invited study group; 74 in 102 invited controls | SF‐36 | Self‐report |
| Natalucci, et al 10 | 2013 | (all ELBW) in Switzerland (1983‐1985) | 22‐26 years | <1000g | 55 in 65 traced study group, no controls; community norms | SF‐36 | self‐report |
| Poole, et al 8 | 2017 | McMaster cohort, Central‐west Ontario, Canada (1977‐1982) | 22‐26 y | <1000 g | 70 in 179 surviving study group; 83 in 145 recruited at 8yrs controls | SF‐36 | Self‐report |
| Roberts, et al 13 | 2013 | Victoria, Australia (1991‐1992) | 18 y | <1000 g or < 28 wk | 186 (HUI3)/183 (SF‐36) in 298 surviving study group; 138 (HUI3)/144 (SF‐36) in 262 matched controls | SF‐36 & HUI‐3 | Self‐report |
| Saigal, et al 7 | 2006 | McMaster cohort, Central‐west Ontario, Canada (1977‐1982) | 23 y | <1000 g | 143 in 179 surviving study group; 130 in 145 recruited at 8yrs controls | HUI‐2; plus hypothetical states | Interview self‐report (parents proxy for impaired participants) |
| Saigal, et al 9 | 2016 | McMaster cohort, Central‐west Ontario, Canada (1977‐1982) | 22‐26 y AND 29‐36 y | <1000 g | 141 (22‐26 y) and 94 (29‐36 y) in 179 surviving study group; 133 & 83 in 145 recruited at 8yrs controls | HUI‐3 | interview |
| Vederhus, et al 20 | 2015 | Haukeland University Hospital, Bergen, Norway (1991‐1992) | 18 y | <1000 g or < 28 wk | 31 in 35 eligible study group; 29 in 35 eligible controls | Child Health Questionnaire (CHQ) | Self‐report and parent report |