Table 1.

Characteristics of the final analytical sample of children with CHD

Measure	N = 56
Demographics
Age at birth median (IQR)	38.43 (0.57)
Corrected age at follow‐up in months median (IQR)	22.23 (0.722)
Male number (%)	31 (55.4)
Cardiac physiology
Cyanotic heart disease number (%)	44 (78.6)
Heart defect causing abnormal mixing of blood
Transposition of the great arteries number (%)	26 (46.4)
Truncus arteriosus number (%)	2 (3.6)
Left‐sided abnormalities of the heart
Coarctation of the aorta number (%)	9 (16.1)
Hypoplastic left heart syndrome number (%)	2 (3.6)
Right‐sided abnormalities of the heart
Tetralogy of Fallot number (%)	9 (16.1)
Pulmonary stenosis number (%)	3 (5.4)
Pulmonary atresia number (%)	3 (5.4)
Tricuspid atresia number (%)	2 (3.6)
Clinical characteristics
Brain injury seen on presurgical MRI number (%)
None	35 (63.6)
Mild	11 (20)
Moderate	6 (10.9)
Severe	3 (5.5)
Cumulative number of days on ICU post‐surgery median (IQR)	4.5 (4.75)
Days to corrective or palliative surgery median (IQR)	16.5 (140.5)
Cumulative minutes on bypass during surgery median (IQR)	149 (113.75)
Follow‐up assessment scores
Bayley‐III cognitive composite score mean (SD)	91.5 (13.3)
Bayley‐III language composite score mean (SD)	89.8 (16.6)
Bayley‐III motor composite score mean (SD)	93.4 (12.8)
Cognitively stimulating parenting scale mean (SD)	31.1 (6.73)
Socioeconomic factors
Highest maternal level of education at follow‐up assessment number (%)
GCSE/O‐levels	6 (12.5)
A‐levels	4 (8.3)
Vocational/college education	13 (27.1)
Higher education	25 (52.1)
Annual household income at follow‐up assessment number (%)
<£20,000	7 (12.3)
£20,000–29,999	4 (7)
£30,000–39,999	6 (10.5)
£40,000–59,999	11 (19.3)
£60,000–79,999	4 (7)
£80,000–99,999	4 (7)
£100,000–149,999	4 (7)
>£149,999	3 (5.3)

Abbreviation: ICU, intensive care unit.