Table 1.
Quality of life survey demographics
| Total age cohort | Adolescents (12–18) | Young adults (19–24) | |
|---|---|---|---|
| Total | 85 | 44 (52%) | 41 (48%) |
| SMA type | |||
| Type I | 6 (7%) | 4 (5%) | 2 (2%) |
| Type II | 56 (66%) | 28 (33%) | 28 (33%) |
| Type III | 23 (27%) | 12 (14%) | 11 (13%) |
| Gender | |||
| Female | 53 (62%) | 28 (33%) | 25 (29%) |
| Male | 31 (37%) | 15 (18%) | 16 (19%) |
| Non-binary | 1 (1%) | 1 (1%) | 0 |
| Motor function at time of diagnosisa | |||
| Non-independent sitter | 25 (29%) | 13 (15%) | 12 (14%) |
| Sitter/non-independent walker | 37 (44%) | 20 (24%) | 17 (20%) |
| Walker | 23 (27%) | 11 (13%) | 12 (14%) |
| Motor function at time of survey completion* | |||
| Non-independent sitter | 31 (37%) | 17 (20%) | 14 (17%) |
| Sitter/non-independent walker | 40 (47%) | 19 (22%) | 21 (25%) |
| Walker | 14 (16%) | 8 (9%) | 6 (7%) |
85 individuals responded to the QoL survey. Non-binary was included as a gender option, and describes individuals who identify with no one gender
aMotor function abilities were divided into three categories: non-independent sitter (head control, maintain seated position supported), sitter/non-independent walker (maintain seated position unsupported, crawl, cruise), and walkers (walk independently). All demographic information was self-identified. All percentages are based on the total surveyed population of 85 respondents