Table 3.
QoL free text responses to question 2
| How does SMA affect your schooling? | |||||||
|---|---|---|---|---|---|---|---|
| Age | Motor function | ||||||
| Adolescents n = 44% (95% CI) | Young Adults n = 41% (95% CI) | p value | Non independent sitter n = 31% (95% CI) | Sitter/non-independent walker n = 40% (95% CI) | Independent walker n = 14% (95% CI) | p value | |
| Accessibility | 11.36 (3.79–24.56) | 9.76 (2.72–23.13) | 0.55 | 6.45 (0.79–21.42) | 7.5 (1.57–20.39) | 28.57 (8.39–58.10) | 0.077 |
| Activity limitation | 13.64 (5.17–27.35) | 2.44 (0.06–12.9) | 0.11 | 3.23 (0.08–16.70) | 15 (5.71–29.84) | 0 | 0.163 |
| Aid | 9.09 (2.53–21.67) | 12.2 (4.08–26.20) | 0.733 | 12.9 (3.63–29.83) | 12.5 (4.2–26.8) | 0 | 0.457 |
| Everyday | 11.36 (3.79–24.56) | 4.88 (0.60–16.53) | 0.435 | 9.68 (2.04–25.75) | 2.5 (0.06–13.16) | 21.43 (4.66–50.80) | 0.073 |
| Fatigue | 2.27 (0.06–12.02) | 17.07 (7.15–32.06) | 0.026* | 6.45 (0.79–21.42) | 12.5 (4.2–26.8) | 7.14 (0.18–33.9) | 0.79 |
| Homeschool | 18.18 (8.19–32.71) | 0 | 0.006* | 6.45 (0.79–21.42) | 12.5 (4.2–26.8) | 7.14 (0.18–33.9) | 0.79 |
| Keep up | 6.82 (1.43–18.66) | 9.76 (2.72–23.13) | 0.707 | 9.68 (2.04–25.75) | 7.5 (1.57–20.39) | 7.14 (0.18–33.9) | 1 |
| More effort | 4.55 (0.56–15.47) | 14.63 (5.57–29.17) | 0.147 | 16.13 (5.45–33.73) | 7.5 (1.57–20.39) | 0 | 0.255 |
| No effect | 15.91 (6.64–30.07) | 14.63 (5.57–29.17) | 0.87 | 16.13 (5.45–33.73) | 17.5 (7.34–32.78) | 7.14 (0.18–33.9) | 0.642 |
| Other | 4.55 (0.56–15.47) | 7.32 (1.54–19.9) | 0.669 | 9.68 (2.04–25.75) | 2.5 (0.06–13.16) | 7.14 (0.18–33.9) | 0.381 |
| Writing | 2.27 (0.06–12.02) | 7.32 (1.54–19.9) | 0.349 | 3.23 (0.08–16.70) | 2.5 (0.06–13.16) | 14.29 (1.78–42.81) | 0.217 |
Although the most common response was ‘no effect’ with 13 total participants, responses were distributed evenly across a variety of factors including accessibility, aid, and fatigue. When categorized by motor function at time of survey completion, sitters were the main respondents of ‘no effect’, while non-sitters more commonly detailed accessibility, aid, and time/effort challenges. Percentages are out of total number of respondents (n = 85). The table values represent statistically significant differences in responses between either the age groups (2 bins) or between the motor function groups (3 bins) using a chi square or Fisher’s exact test. Highlighted findings were found to have statistical significance; asterisk (*) indicates significance by Fisher’s exact test and carrots (^) indicates significance by Chi2 test