Table 5.
Quality of life measures (mean ± SD)
| Measure | OI type | I | III | IV | Pulmonary comorbidities | No pulmonary comorbidities | Pulmonary scarring (CT scan) | No scarring (CT scan) | Bronchial wall thickening | No bronchial wall thickening | Scoliosis | No scoliosis | Total | General population [5, 11, 40, 41] |
| SF-36 | Mental component summary score | 48 ± 9 | 51 ± 7 | 48 ± 11 | 42 ± 7 | 51 ± 9 | 46 ± 6 | 50 ± 11 | 48 ± 9 | 49 ± 10 | 50 ± 9 | 45 ± 9 | 49 ± 9 | 50 ± 10 |
| Physical component summary score | 47 ± 8 | 41 ± 10 | 45 ± 9 | 36 ± 6 | 48 ± 8 | 39 ± 8 | 47 ± 7 | 43 ± 9 | 49 ± 5 | 44 ± 9 | 46 ± 9 | 45 ± 9 | 50 ± 10 | |
| St. George’s Respiratory Questionnaire | Symptom | 19 ± 18 | 27 ± 18 | 27 ± 16 | 35 ± 16 | 21 ± 16 | 29 ± 17 | 24 ± 16 | 24 ± 16 | 32 ± 15 | 21 ± 15 | 33 ± 20 | 25 ± 17 | 12 (9-15) |
| Activity | 13 ± 17 | 32 ± 26 | 22 ± 23 | 35 ± 26 | 18 ± 20 | 28 ± 26 | 20 ± 22 | 22 ± 23 | 27 ± 25 | 21 ± 20 | 25 ± 30 | 22 ± 23 | 9 (7-12) | |
| Impact | 7 ± 13 | 18 ± 15 | 5 ± 6 | 23 ± 16 | 5 ± 7 | 16 ± 16 | 5 ± 7 | 10 ± 13 | 8 ± 11 | 9 ± 12 | 10 ± 14 | 9 ± 12 | 2 (1-3) | |
| Total | 10 ± 15 | 24 ± 17 | 15 ± 11 | 29 ± 17 | 12 ± 11 | 23 ± 18 | 13 ± 12 | 16 ± 15 | 18 ± 15 | 15 ± 14 | 18 ± 18 | 16 ± 15 | 6 (5-7) | |
| Sleep questionnaires | Functional outcomes of sleep questionnaire | 18 ± 2 | 17 ± 2 | 18 ± 2 | 17 ± 2 | 18 ± 2 | 17 ± 2 | 18 ± 2 | 18 ± 2 | 18 ± 2 | 18 ± 2 | 18 ± 2 | 18 ± 2 | ≥ 17 = normal |
| Pittsburgh Sleep Quality index | 6 ± 3 | 5 ± 3 | 9 ± 4 | 9 ± 6 | 6 ± 3 | 7 ± 3 | 8 ± 5 | 7 ± 4 | 7 ± 1 | 7 ± 4 | 7 ± 2 | 7 ± 4 | 2.67 ± 1.70; ≤ 5 = normal |