Table 3.
No Pain, Speech (N = 18) |
No Pain, No Speech (N = 11) |
Pain, Speech (N = 17) |
Pain, No Speech (N = 13) |
|
---|---|---|---|---|
Family Impact Module | ||||
Global scores | ||||
Total impact | 69.71 (20.91), 26.39–94.44 | 61.46 (12.52), 38.89–72.22 | 70.49 (13.44), 46.53–88.89 | 74.90 (14.21), 50.69–96.53 |
Parent health-related quality of life summary | 79.11 (20.83), 37.50–100 | 62.71 (14.80), 42.50–75.00 | 73.91 (15.68), 48.75–96.25 | 78.57 (15.56), 50.00–100 |
Family functioning summary | 75.00 (27.56), 0–100 | 72.45 (14.83), 53.57–92.86 | 73.81 (14.83), 46.43–92.86 | 83.67 (15.82), 57.14–100 |
Dimensions | ||||
Physical functioning | 79.72 (22.82), 25.00–100 | 58.33 (20.27), 33.33–83.33 | 64.38 (16.62), 37.50–95.83 | 76.79 (29.74), 16.67–100 |
Emotional functioning | 76.67 (25.96), 10.00–100 | 56.43 (22.12), 20.00–80.00 | 61.50 (30.65), 0–100 | 63.57 (23.58), 30.00–100 |
Social functioning | 80.42 (16.00), 43.75–100 | 65.48 (16.31), 37.50–87.50 | 71.25 (20.24), 43.75–100 | 83.93 (27.68), 37.50–100 |
Cognitive functioning | 79.64 (25.53), 15.00–100 | 77.86 (20.59), 50.00–100 | 83.33 (11.99), 70–100 | 91.43 (20.56), 45.00–100 |
Communication | 83.93 (22.38), 33.33–100 | 70.24 (30.89), 41.67–100 | 82.41 (17.40), 50.00–100 | 85.71 (11.50), 66.67–100 |
Worry | 41.43 (35.91), 0–100 | 50.00 (26.93), 0–75.00 | 58.33 (13.23), 40–80 | 56.43 (22.86), 30.00–95.00 |
Daily activities | 61.61 (34.13), 0–100 | 37.50 (27.00), 0–87.50 | 55.56 (25.09), 0–75.00 | 60.71 (34.93), 0–100 |
Family relationships | 80.36 (29.32), 0–100 | 86.43 (16.26), 65.00–100 | 81.11 (15.77), 50.00–100 | 92.86 (9.51), 80.00–100 |
Healthcare Satisfaction Generic Module | ||||
Global score | 94.13 (25.50), 2.22–94.13 | 58.97 (15.14), 40.07–82.00 | 59.27 (24.63), 16.50–59.27 | 76.89 (15.49), 50.00–100 |
Information | 54.60 (32.99), 0–95.00 | 55.00 (27.02), 25.00–90.00 | 60.83 (18.29), 40.00–100 | 70.29 (31.68), 25.00–100 |
Inclusion of family | 66.00 (31.60), 0–100 | 45.83 (28.96), 0–75.00 | 54.44 (38.75), 0–100 | 85.71 (20.32), 43.75–100 |
Communication | 63.27 (29.60), 0–100 | 49.00 (11.24), 35.00–60.00 | 63.04 (31.27), 5.00–100 | 63.97 (22.47), 40.00–100 |
Technical skills | 57.51 (28.74), 8.33–100 | 75.00 (13.94), 66.67–100 | 54.38 (38.75), 0–100 | 88.33 (17.45), 60.00–100 |
Emotional needs | 50.83 (29.47), 0–93.75 | 41.46 (31.05), 0–87.50 | 51.56 (40.35), 0–100 | 63.75 (21.07), 40.00–100 |
Overall satisfaction | 79.22 (33.09), 0–100 | 87.50 (26.46), 58.33–100 | 83.33 (27.22), 25.00–100 | 89.29 (10.67), 60.49–100 |