Table 3.
Subtheme | Description | # of Patients Referencing | Patient Exemplar Quote | # of Caregivers Referencing | Caregiver Exemplar Quote |
---|---|---|---|---|---|
Adaptability | Suggested additions/changes to system now or in future | 0 | (Not referenced by patient) | 4 | Letting there be more than one person [as caregiver]. |
Expectations | Expectations for the system not aligning with beta functioning | 1 | Integration with… asking a live (question), not that it’s urgent but get back to me, or whatever… | 3 | Yeah, because then I don’t have to place the phone call I can type it in—hey, I got a question about this, or can somebody contact me—you know I can just put it in the system and it will go through to his care team. |
Need for User Testing | Need to use the system “hands-on” | 1 | I would have to use it a few times. | 3 | I still think it should be rolled out and then used. |
Overwhelming | Cancer treatment and diagnosis involves high volume of information | 1 | I think somebody needs to walk them through it… when you get in there you’re in shock. | 1 | I [caregiver has a nursing background] have an edge above the typical lay person who’s coming in here in a whirlwind of emotions and what the heck do we do next… oh my god it’s information overload. |
Lack of Portal Use | Patient does not use the current portal system or have previous experience | 3 |
I never used it.
She [caregiver] is very computer literate and she has no problem at all going on there you know. |
0 | (Not referenced by a caregiver) |