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. 2021 Feb 10;9(2):193. doi: 10.3390/healthcare9020193

Table 3.

Concern subthemes, descriptions, and exemplars for patients and caregivers.

Subtheme Description # of Patients Referencing Patient Exemplar Quote # of Caregivers Referencing Caregiver Exemplar Quote
Adaptability Suggested additions/changes to system now or in future 0 (Not referenced by patient) 4 Letting there be more than one person [as caregiver].
Expectations Expectations for the system not aligning with beta functioning 1 Integration with… asking a live (question), not that it’s urgent but get back to me, or whatever… 3 Yeah, because then I don’t have to place the phone call I can type it in—hey, I got a question about this, or can somebody contact me—you know I can just put it in the system and it will go through to his care team.
Need for User Testing Need to use the system “hands-on” 1 I would have to use it a few times. 3 I still think it should be rolled out and then used.
Overwhelming Cancer treatment and diagnosis involves high volume of information 1 I think somebody needs to walk them through it… when you get in there you’re in shock. 1 I [caregiver has a nursing background] have an edge above the typical lay person who’s coming in here in a whirlwind of emotions and what the heck do we do next… oh my god it’s information overload.
Lack of Portal Use Patient does not use the current portal system or have previous experience 3 I never used it.
She [caregiver] is very computer literate and she has no problem at all going on there you know.
0 (Not referenced by a caregiver)