Table 1:

Healthcare Generated Data Types, their Content, Examples of Potential Uses and the Sources Employed

Data Type	Information contained in data type	Examples of Possible Use	Example Sources for Data Type
Claims Data	Inpatient, clinic, home health, hospice, medication data used for billing	Identify participants diagnosed with dementia; Measure outcomes (e.g. readmissions, hospital transfers, antipsychotic use)	CMS Virtual Research Data Center (FFS Medicare), NIH Collaboratory Distributed Research Network (Medicare Advantage and commercial)
Enrollment Data	Demographic, geographic, and plan type for enrollees in insurance (Fee-for-service/ Medicare Advantage/ commercial)	Estimate available eligible sample Identify settings for further dissemination	CMS Virtual Research Data Center (FFS Medicare), NIH Collaboratory Distributed Research Network (Medicare Advantage and commercial), OPTUM
Assessment Files	Clinical data for quality reporting & payment in nursing homes and home care	Identify home health agencies or nursing homes with high proportion PLWD	Minimum Dataset (nursing home), OASIS (home health) from CMS or directly from healthcare setting.
Electronic Health Records	Structured data (labs, problem lists), text fields, billing data, patient reported outcomes	Cognitive screens & clinical notes to identify undiagnosed PLWD	Directly from participating healthcare setting, federated data intermediaries (e.g. PCORnet, ACT)
Provider Files	Type, size, location, ownership	Find physician practices serving high ethnic minority populations	PECOS, Provider of Service Files, Medicare Provider Practice & Specialty

Key: VRDC = Virtual Research Data Center; DRN = Distributed Research Network, PECOS = Medicare Provider Enrollment, Chain, & Ownership System; POS= Medicare Place of Service File;