. 2021 Mar 2;21:432. doi: 10.1186/s12889-021-10433-4

Table 2.

Overview of data collection timepoints during follow-up

Collected data	Data source	M6	M12	M18	M24	M30	M36	Y4	Y5	Y6	Y7	Y8	Y9
Disease status at last hematology consultation	Patient medical record	x	x	x	x	x	x	x	x	x	x	x	x
Number of consultations and imaging exams	Patient medical record	x	x	x	x	x	x	x	x	x	x	x	x
Treatment lines^a	Patient medical record	x	x	x	x	x	x	x	x	x	x	x	x
Response to treatment	Patient medical record	x	x	x	x	x	x	x	x	x	x	x	x
Adverse events	Patient medical record	x	x	x	x	x	x	x	x	x	x	x	x
Relapses/progressions/transformations^b	Patient medical record	x	x	x	x	x	x	x	x	x	x	x	x
New malignancy	Patient medical record	x	x	x	x	x	x	x	x	x	x	x	x
New morbidities	Auto-questionnaire	x		x		x		x	x	x	x	x	x
Lifestyle	Auto-questionnaire	x		x				x		x		x
Professional situation	Auto-questionnaire		x		x				x		x		x
Work stress	Auto-questionnaire (Siegrist questionnaire)		x		x				x		x		x
Quality of life	Auto-questionnaire (QLQ-C30 + lymphoma specific modules)		x		x		x			x			x
Social support	Auto-questionnaire (SSQ6)	x	x		x		x	x	x	x	x	x	x
Women sexual and reproductive health	Auto-questionnaire					x
Health behaviors^c	Auto-questionnaire						x			x			x
Date and cause of death	Patient medical record
End of study: reasons for early termination	Patient medical record

^adetailed therapies, start/end dates, dose modality (full/reduced in chemotherapy), amount of Gray if radiotherapy, transplant and other surgeries

^bdates, involvement, available documentation, method of evaluation used, staging

^cincluding use of alternative medicine, screening behaviors