Table 2.
Motivation to give broad consent.
| Concept | Motivational item | German survey 2018 (n = 468) Number (%) | Dutch survey 2019 (n = 3422) Number (%) | P value |
|---|---|---|---|---|
| Altruism | Support of research in general | 403 (86.1) | 1375 (40.2) | <0.001a |
| Helping all future patients | 315 (67.3) | 859 (25.1) | <0.001a | |
| Reciprocity | Returning own benefit from research | 339 (72.4) | 794 (23.2) | <0.001a |
| Solidarity | Helping future patients with same disease | 328 (70.1) | 699 (20.4) | <0.001a |
| Feeling connected with future patients | 189 (40.4) | 848 (24.8) | <0.001a | |
| Gratitude | Gratitude toward doctors | 214 (45.7) | 487 (14.2) | <0.001a |
| Other | Hope for personal benefit | 153 (32.7) | 847 (24.8) | <0.001a |
| Knowing of others who consented | 16 (3.4) | 22 (0.6) | <0.001b | |
| Worry about disadvantages when not consenting | 4 (0.9) | 18 (0.5) | 0.328b | |
| No specific reasons | 41 (8.8) | 21 (0.6) | <0.001b |
aχ2-test
bFisher’s exact test.