Table 4.
Characteristics of participants who reported difficulty understanding genomic screening results received by mail.
| Letter was difficult to understand | Lab report was difficult to understand | My results left me with unanswered questions | ||||
|---|---|---|---|---|---|---|
| Yes | No | Yes | No | Yes | No | |
| Characteristic | 434 (30.4) | 994 (69.6) | 685 (46.6) | 736 (51.8) | 410 (29.0) | 1006 (71.1) |
| Sexb | ||||||
| Male | 167 (39.3) | 428 (43.7) | 272 (40.5) | 321 (44.2) | 169 (41.8) | 422 (42.5) |
| Female | 258 (60.7) | 552 (56.3) | 400 (59.5) | 405 (55.8) | 235 (58.2) | 570 (57.5) |
| Age (years) at study invitec | ||||||
| Mean (SD) | 61.9 (6.8) | 60.2 (7.5) | 61.6 (6.9) | 59.9 (7.7) | 61.5 (7.1) | 60.4 (7.5) |
| Range | 30 – 71 | 27 – 71 | 30 – 71 | 27 – 71 | 30 – 71 | 27 – 71 |
| Genetic Knowledgec | ||||||
| Mean (SD) | 7.8 (2.4) | 8.5 (2.1) | 8.1 (2.3) | 8.5 (2.1) | 7.9 (2.4) | 8.5 (2.1) |
| Range | 0 – 11 | 0 – 11 | 0 – 11 | 0 – 11 | 0 – 11 | 0 – 11 |
| Educationb | ||||||
| Grades 9–11 | 0 (0.0) | 1 (0.1) | 1 (0.2) | 0 (0.0) | 0 (0.0) | 1 (0.1) |
| Grade 12/GED | 74 (17.3) | 93 (9.5) | 94 (14.0) | 73 (10.0) | 59 (14.5) | 106 (10.7) |
| College 1–3 years | 163 (38.1) | 331 (33.7) | 230 (34.1) | 264 (36.2) | 146 (36.0) | 344 (34.6) |
| College 4+ years | 107 (25.0) | 295 (30.0) | 190 (28.2) | 206 (28.3) | 113 (27.8) | 284 (28.6) |
| Grad/professional school | 84 (19.6) | 262 (26.7) | 159 (23.6) | 186 (25.5) | 88 (21.7) | 258 (26.0 |
| Health literacyb | ||||||
| Adequate Health Literacy | 388 (90.7) | 937 (95.6) | 626 (92.9) | 692 (95.2) | 377 (92.9) | 942 (95.0) |
| Inadequate Health Literacy | 40 (9.4) | 43 (4.4) | 48 (7.1) | 35 (4.8) | 29 (7.1) | 50 (5.0) |
| Unable to access physician due to costb | 9 (2.1) | 19 (1.9) | 11 (1.6) | 16 (2.2) | 10 (2.5) | 16 (1.6) |
| Financial Situation (income)b | ||||||
| More than enough | 320 (75.8) | 830 (84.9) | 548 (81.8) | 599 (82.9) | 321 (79.7) | 827 (83.6) |
| Just enough | 81 (19.2) | 120 (12.3) | 102 (15.2) | 97 (13.4) | 63 (15.6) | 135 (13.7) |
| Have to cut back | 16 (3.8) | 24 (2.5) | 16 (2.4) | 23 (3.2) | 15 (3.7) | 23 (2.3) |
| Difficulty paying bills | 5 (1.2) | 4 (0.4) | 4 (0.6) | 4 (0.6) | 4 (1.0) | 4 (0.4) |
| Insurance coverageb | ||||||
| None | 2 (0.5) | 7 (0.7) | 3 (0.4) | 6 (0.8) | 3 (0.7) | 6 (0.6) |
| Private | 312 (73.1) | 785 (79.9) | 502 (74.6) | 590 (80.9) | 302 (74.6) | 786 (79.2) |
| Public program | 113 (26.5) | 190 (19.4) | 168 (25.0) | 133 (18.2) | 100 (24.7) | 201 (20.2) |
a
Values are N (%) unless otherwise noted;
b
Chi-Square;
c
Wilcoxon Rank Sum
Differences across demographic types that are statically significant (p≤0.05) appear in bold.