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Table 2.

Development of disease‐specific tools

Subjects Methods Measures Results Conclusions Country and year Reference
304 patients with upper limb lymphoedema Validation study using cross‐sectional data and follow‐up information after 28 days. Validation of ULL‐ 27, a 27‐item questionnaire in three dimensions: physical, psychological andsocial withdrawl At day 0, the physical and social dimensions of the ULL‐27 were significantly correlated with the severity of the illness but not the psychological dimension. 
Sensitivity between day 0 and day 28 demonstrated significant differences between all ULL‐27 dimensions. Volume of oedema poorly reflects the impact of the illness upon the patient. The ULL‐27 scale seems to be a consistent instrument. France 
2001 (22)

ULL‐27: Upper Limb Lymphoedema 27 item questionnaire.