Table 4.

Research questions by caregiver-identified topic

Topic	Potential research questions
Training and information about cancer and treatment	• What modes of delivering health information (text, video, online, or paper) to caregivers work best and for whom? • How should caregiver educational and training interventions be designed to provide caregivers with timely, efficient health information and caregiving skills? • How is health information between caregivers, healthcare providers, and patients shared, and how does this impact caregiver and patient decision-making and outcomes?
Caregiver integration into the patient’s healthcare delivery	• How can clinicians and healthcare systems integrate various caregiver structures into the cancer care (e.g., number of caregivers, location relative to the patient, etc.)? • How does the caregiver perspective shape clinical care, and how can clinicians’ communication styles elicit and include caregivers within assessment and decision-making? • How can the medical record be used as a platform for incorporating caregivers into the health information delivery and decision-making?
Assistance with navigating the healthcare system	• How do caregivers access people and resources within the cancer care delivery system and how can this be more efficient? • What barriers prevent caregivers from being able to effectively navigate the healthcare system, and how can these barriers be overcome through innovative interventions?
Focus on caregiver health and well-being	• What interventions reduce caregiver distress and how does this impact the experience and health impacts of caregiving? • Do peer mentors improve caregivers’ unmet needs and reduce their distress? If so, how can such programs be designed to be scalable and replicable?
Policy reform to address caregivers	• What models of care successfully integrate caregivers into clinical care and what impact does this have on caregivers and patients? • To what extent do health-related training programs currently include caregivers within their curricula, and what content can be added to provide them with adequate training on the role of caregivers?