TABLE 4.
Participant | Quote a |
---|---|
36 (Caregiver) | "No medication available in hospital." |
37 (Adult) | "Hardly any doctors and not enough nurses on shift." |
30 (Caregiver) | "The health care system is better than before. Improvements are seen." |
28 (Caregiver) | "I wish I could have some help to understand how to deal with a child with SCD." |
23 (Adult) | "I feel like the doctors need to have a conversation with the patient about sickle cell and what it means." |
40 (Caregiver) | "More information is needed to be shared on how SCD is passed on." |
33 (Adult) | "It's hard to get to the hospital. When it takes too long to get there, I get sicker." |
31 (Caregiver) | "Translating children's care clinics to adult care clinics would be beneficial." |
Comments are quoted verbatim from either phone interviews or online surveys.