Table 2.
Score allocations from round 2 by panel and total (%) critical ratings (i.e., between 7 and 9)
| Outcomes | Score allocations by panel1 | Total critical ratings (n = 54) (%) | Median (IQR) | Consensus | |||||
|---|---|---|---|---|---|---|---|---|---|
| Cancer survivors (n = 25) | Health and research professionals (n = 29) | ||||||||
| Score | |||||||||
| Not important (%) | Important (%) | Critical (%) | Not important (%) | Important (%) | Critical (%) | ||||
| Depression | 0 | 0 | 100 | 0 | 0 | 100 | 100 | 9 (1) | In |
| Anxiety | 0 | 12 | 88 | 0 | 0 | 100 | 94 | 8 (2) | In |
| Overall symptom burden | 0 | 3 | 88 | 0 | 12 | 97 | 93 | 8 (2) | In |
| Pain | 0 | 8 | 92 | 0 | 7 | 93 | 93 | 8 (2) | In |
| Overall quality of life | 0 | 8 | 92 | 0 | 14 | 86 | 89 | 8 (2) | In |
| Overall health status | 0 | 16 | 84 | 3 | 21 | 76 | 80 | 8 (2) | In |
| Fatigue | 0 | 28 | 72 | 0 | 24 | 76 | 74 | 7 (3) | In |
| Cognitive problems | 0 | 20 | 80 | 0 | 31 | 69 | 74 | 7 (2) | In |
| Functional impairment | 4 | 28 | 68 | 3 | 17 | 79 | 74 | 7 (2) | In |
| Financial toxicity | 0 | 16 | 84 | 0 | 41 | 59 | 70 | 7 (3) | In |
| Fear of cancer recurrence or progression | 4 | 28 | 68 | 3 | 28 | 69 | 69 | 7 (2) | Marginal |
| Role limitations | 0 | 32 | 68 | 0 | 34 | 66 | 67 | 7 (2) | Marginal |
| Impact on family and relationships | 4 | 28 | 68 | 10 | 31 | 59 | 63 | 7 (1) | Marginal |
| Psychological adjustment to cancer | 4 | 24 | 72 | 3 | 48 | 48 | 59 | 7 (2) | Marginal |
| Peripheral neuropathy | 4 | 24 | 68 | 3 | 48 | 48 | 57 | 7 (1) | Marginal |
| Mobility | 4 | 28 | 64 | 0 | 41 | 59 | 61 | 7 (2) | Out |
| Sleep disturbance | 4 | 36 | 60 | 0 | 48 | 52 | 56 | 7 (2) | Out |
| Social support | 0 | 48 | 52 | 3 | 41 | 55 | 54 | 7 (3) | Out |
| Access to supportive care and services | 0 | 40 | 60 | 10 | 41 | 48 | 54 | 7 (3) | Out |
| Health service utilisation | 4 | 32 | 64 | 10 | 45 | 45 | 54 | 7 (1) | Out |
| Work-related distress | 4 | 32 | 64 | 7 | 55 | 38 | 50 | 6.5 (2) | Out |
| Social limitations | 0 | 52 | 48 | 3 | 48 | 48 | 48 | 6 (3) | Out |
| Bowel problems | 4 | 44 | 48 | 3 | 48 | 48 | 48 | 6.5 (2) | Out |
| Lymphedema | 4 | 28 | 60 | 7 | 55 | 38 | 48 | 6.5 (2) | Out |
| Incontinence | 4 | 36 | 60 | 3 | 59 | 38 | 48 | 6 (1) | Out |
| Fertility and reproductive problems | 4 | 40 | 52 | 0 | 59 | 41 | 46 | 6 (1) | Out |
| Existential distress | 12 | 28 | 60 | 17 | 48 | 34 | 46 | 6 (2) | Out |
| Cultural and linguistic barriers to obtaining, accepting, and understanding treatments | 4 | 32 | 60 | 10 | 35 | 34 | 46 | 6 (1) | Out |
| Sexual functioning | 8 | 52 | 40 | 0 | 52 | 48 | 44 | 6 (2) | Out |
| Social isolation | 4 | 52 | 44 | 7 | 52 | 41 | 43 | 6 (2) | Out |
| Lifestyle modifications | 12 | 40 | 48 | 10 | 52 | 38 | 43 | 6 (1) | Out |
| Health literacy | 8 | 40 | 52 | 3 | 62 | 34 | 43 | 6 (2) | Out |
| Dyspnoea (i.e., breathlessness) | 8 | 52 | 36 | 3 | 52 | 45 | 41 | 6 (2) | Out |
| Satisfaction with care received | 12 | 28 | 60 | 10 | 6 | 24 | 41 | 6 (3) | Out |
| Informational support | 12 | 44 | 44 | 3 | 62 | 34 | 39 | 6 (1) | Out |
| Nausea/vomiting | 4 | 44 | 48 | 3 | 66 | 31 | 39 | 6 (3) | Out |
| Cachexia (i.e., muscle weakness) | 8 | 52 | 36 | 0 | 62 | 38 | 37 | 6 (2) | Out |
| Changes in body weight | 8 | 52 | 40 | 0 | 66 | 34 | 37 | 6 (2) | Out |
| Practical difficulties | 8 | 40 | 48 | 28 | 45 | 28 | 37 | 6 (3) | Out |
| Empowerment | 4 | 40 | 56 | 21 | 59 | 21 | 37 | 6 (2) | Out |
| Body image | 8 | 52 | 40 | 10 | 59 | 31 | 35 | 6 (3) | Out |
| Sense of identity | 12 | 48 | 40 | 17 | 52 | 31 | 35 | 6 (2) | Out |
| Pressures after cancer | 8 | 44 | 48 | 7 | 69 | 24 | 35 | 6 (2) | Out |
| Appetite loss | 12 | 56 | 32 | 7 | 59 | 34 | 33 | 6 (2) | Out |
| Dysphagia (i.e., swallowing difficulty) | 12 | 44 | 40 | 0 | 72 | 28 | 33 | 6 (2) | Out |
| Sense of dignity | 8 | 60 | 32 | 10 | 66 | 24 | 28 | 6 (2) | Out |
| Cancer-related stigma and marginalisation | 12 | 48 | 40 | 24 | 59 | 17 | 28 | 6 (3) | Out |
| Altered vision | 12 | 48 | 36 | 10 | 76 | 14 | 24 | 6 (3) | Out |
| Positive changes | 16 | 48 | 36 | 24 | 62 | 14 | 24 | 6 (3) | Out |
| Altered hearing | 12 | 56 | 28 | 10 | 72 | 17 | 22 | 6 (3) | Out |
| Altered speech | 16 | 44 | 36 | 17 | 76 | 7 | 20 | 6 (2) | Out |
| Spirituality | 24 | 60 | 16 | 34 | 45 | 21 | 19 | 5 (3) | Out |
| Altered taste | 16 | 60 | 20 | 21 | 69 | 10 | 15 | 5 (2) | Out |
Outcomes were classified as ‘In’ if they met the following consensus criteria: (i) median score ≥ 7 with an interquartile range no greater than 2 units, (ii) rated between 7 and 9 by at least 70% of panellists, (iii) rated between 1 and 3 by less than 15% of panellists. Outcomes were ‘Marginal’ if they had a median score ≥ 7 and ≥ 65% majority agreement for one panel. Outcomes that did not meet these criteria were classified as ‘Out’
1Allocation of scores of 1–9 displayed only; ratings of ‘Unable to score’ not shown