Table 3.
Characteristics of the patients and informal caregivers
| Characteristics of patients (n = 9) | Characteristics of informal caregivers (n = 5) | |
|---|---|---|
| Relation to patient | ||
| Partner, n (%) | 5 (100) | |
| Age range in years (mean) | 57–83 (70) | |
| Gender, n (%) | ||
| Women | 3 (33) | 3 (60) |
| Men | 6 (67) | 2 (40) |
| Year of diagnosis, range | 2013–2019 | |
| Current IPF treatment, n (%) | ||
| Pirfenidone | 5 (56) | |
| Nintedanib | 4 (44) | |
| Switch between both anti–fibrotic drugs, n | 1 | |
| Time between diagnosis and initiation anti-fibrotic drug, median in days (IQR) | 74 (99) | |
| Oxygen use, n | 1 | |
| FVC-value (%pred), mean (SD) | 80 (20,6) | |
| DLco-value (%pred), mean (SD) | 52,9 (12,3) | |
| Education level, n (%) | ||
| Lower secondary school finished | 0 | 1 (20) |
| Higher secondary school finished | 4 (45) | 2 (40) |
| Continuing vocational training | 2 (22) | 1 (20) |
| Bachelors or Masters | 3 (33) | 1 (20) |
| Employment status, n (%) | ||
| Employed | 2 (22) | 2 (40) |
| Retired | 7 (78) | 3 (60) |
Continuous variables reported as mean (SD) or median (IQR) according to their normality (assessed with the Shapiro–Wilk Test)