Appendix 3.

Data on retained papers.

Country	Amount	Reference (number)
Australia	4	Basu and Swil11; Henderson44; Forbes et al.49
Canada	1	Tasi58
Germany	1	Lotz et al.24
Netherlands	2	Zaal-Schuller et al.47; De Vos et al.48
UK	6	Mitchell and Dale15; Hiscock and Barclay45; Jack et al.46; Harrop et al.53; Haynes et al.54; Sidgwick et al.57
USA	7	Sanderson et al.25; Durall et al.27; Harrison et al.50; Kruse et al.51; Mack and Joffe55; Pao and Mahoney56; Wiener et al.59
Study design
Qualitative	6	Mitchell and Dale15; Lotz et al.24; Henderson44; Hiscock and Barclay45; Jack et al.46; Zaal-Schuller et al.47
Quantitative inc. Delphi	8	Basu and Swil11; Sanderson et al.25; Durall et al.27; De Vos et al.48; Forbes et al.49; Harrison et al.50; Kruse et al.51; Bradford et al.52
Theoretical	7	Harrop et al.53; Haynes et al.54; Mack and Joffe55; Pao and Mahoney56; Sidgwick et al.57; Tasi58; Wiener et al.59
Published year
2008–2010	2	Forbes et al.49; Tasi58
2011–2013	4	Sanderson et al.25; Durall et al.27; De Vos et al.48; Wiener et al.59
2014–2016	6	Mitchell and Dale15; Lotz et al.24; Zaal-Schuller et al.47; Harrison et al.50; Bradford et al.52; Mack and Joffe55
2017–2019	9	Basu and Swil11; Henderson44; Hiscock and Barclay45; Jack et al.46; Kruse et al.51; Harrop et al.53; Haynes et al.54; Pao and Mahoney56; Sidgwick et al.57
Sample
Doctor	12	Basu and Swil11; Mitchell and Dale15; Lotz et al.24; Sanderson et al.25; Hiscock and Barclay45; Jack et al.46; Zaal-Schuller et al.47; De Vos et al.48; Forbes et al.49; Harrison et al.50; Kruse et al.51; Bradford et al.52
Trainee/Junior Doctor	3	Basu and Swil11; Forbes et al.49; Kruse et al.51
Nurse	10	Mitchell and Dale15; Lotz et al.24; Sanderson et al.25; Durall et al.27; Henderson44; Hiscock and Barclay45; Jack et al.46; Harrison et al.50; Kruse et al.51; Bradford et al.52
Senior/Advance practice Nurse	6	Mitchell and Dale15; Sanderson et al.25; Durall et al.27; Henderson44; Jack et al.46; Kruse et al.51
Allied Health Professional/psychosocial	6	Lotz et al.24; Henderson44; Hiscock and Barclay45; Jack et al.46; Harrison et al.50; Bradford et al.52
Parents	1	Zaal-Schuller et al.47
Midwives	1	Jack et al.46
Care Assistant	1	Jack et al.46
Bereavement support	1	Jack et al.46
N/A	7	Harrop et al.53; Haynes et al.54; Mack and Joffe55; Pao and Mahoney56; Sidgwick et al.57; Tasi58; Wiener et al.59
Setting
PICU/ICU/CICU	6	Mitchell and Dale15; Sanderson et al.25; Durall et al.27; De Vos et al.48; Kruse et al.51; Sidgwick et al.57
Haem/ Oncology wards	4	Sanderson et al.25; Durall et al.27; De Vos et al.48; Kruse et al.51
Neurology/ Metabolic	2	Hiscock and Barclay45; De Vos et al.48
Whole Children’s Hospital or no ward specified.	6	Basu and Swil11; Lotz et al.24; Jack et al.46; Forbes et al.49; Harrison et al.50; Haynes et al.54
Children’s Hospice	1	Jack et al.46
Community	1	Jack et al.46
Care facility	2	Lotz et al.24
Out patient Department	3	Lotz et al.24; Sanderson et al.25; Durall et al.27
Neonatal	1	Jack et al.46
N/A	3	Henderson44; Zaal-Schuller et al.47; Bradford et al.52