Table 2.

Heart rate (HR) observations.

Patient	Typical mean HR ± SD (bpm)	Typical HR increase (bpm)	Hours registered	Increased HR in typical situations	No. of replications of increased HR/No. of measurements
F59	89 ± 7	> 96	51	Physiotherapy Blood glucose testing	72/164 (44%) Not counted
F31	72 ± 4	> 76	29	Fits of tremor and sweating	8/8 (100%)
F18	87 ± 10	> 97	15	During daily nail filing	11/11 (100%)
M54	82 ± 7	> 89	96	Day care center attendance Dressing neuropathic feet	17/17 (100%) Not counted
F58	67 ± 4	> 71	22	Being looked at by children	5/5 (100%)
M62	73 ± 6	> 79	42	No findings	0
F 36	85 ± 11	> 96	115	The sight of apparatus used for standing upright Transport in patient lift	11/11 (100%) Not counted
M48*	78 ± 7	> 85	2:45	Extension of spastic arm	25/27 (93%)
M 37*	58 ± 10	> 68	9	The sight of apparatus used for standing upright Transport in patient lift	10/22 (45%) Not counted
F56	64 ± 12	> 76	11	Physiotherapy (joyful)	14/14 (100%)
M 27	91 ± 15	> 106	41	Travel by car (joyful) Epileptic seizures	Not counted 3/3 (100%)
F22	78 ± 11	> 89	150	Going outdoors (stressful)	16/23 (70%)
F14	92 ± 9	> 101	220	Extension of spastic arm Change of diapers Transport in patient lift	22/29 (76%) 19/24 (79%) Not counted
M18	63 ± 11	> 74	110	Watching childrens’ movies Extension of spastic arm	8/9 (89%) 6/6 (100%)

Typical mean HR in beats per minute (bpm) and 1 standard deviation (SD) for each participant. The mean HR, SD and HR increase (> mean HR+ 1SD) were calculated daily. Typical situations that were associated with increased HR are given together with number of replications/total number of observed situations. Eight participants were interpreted as experiencing pain or distress during episodes with increased HR; three participants (F56, M27, and M18) were considered to experience joy during some of the episodes with increased HR.