TABLE 1.

Collaborating primary ciliary dyskinesia (PCD) support organisations

PCD support organisation	Country	Contact persons	Website
Selbsthilfegruppe Primäre Ciliäre Dyskinesie	Switzerland	Bernhard Rindlisbacher
Verein Kartagener-Syndrom und PCD	Germany	Hansruedi Silberschmidt	www.kartagener-syndrom.org/index.php/verein
PCD Family Support Group UK	UK	Lucy Dixon	www.pcdsupport.org.uk
PCD Foundation	USA and Canada	Michele Manion	www.pcdfoundation.org
PCD Australia Primary Ciliary Dyskinesia	Australia	Catherine Kruljac	www.pcdaustralia.org.au/
Associazione Italiana Discinesia Ciliäre Primaria Sindrome di Kartagener Onlus	Italy	Letizia Andolfi, Sara Bellu	www.pcdkartagener.it/associazione/