Table 2.

Codebook

Second order themes (no. of first order themes per second order theme)	Definition	Second order subthemes (no. of first order themes per second order subtheme)	Definition	Examples of first order theme
Adjustments	Coping strategies used	General	General or non-specific	Coping with the disease
(n = 77)	to deal with the	(n = 10)	coping strategies
	disruptions caused	Medication	(Adjusting to) the use	Dealing with the unpredictable effects
	by Parkinson’s	(n = 9)	of antiparkinsonian agents	of medication; considering medicine
	disease	Physical exercise	Using physical exercise	Staying active; putting physical
		(n = 2)	as a means to cope with PD	exercise into practice
		Planning for the future	Plans and hopes for	Treatment choices in the
		(n = 4)	future treatment of PD	future; envisioning a future
		Problems	Difficulties in coping with PD	Crumbling managing strategies
		(n = 11)		and routines; coping fatigue
		Psychological strategies	Attitudinal adjustments or rhetorical	Maintaining a positive outlook;
		(n = 13)	strategies employed to cope with PD	using downward comparison
		Routines	Behavioral patterns developed	Managing time and energy;
		(n = 19)	to cope with PD	to be foreseeing and plan
		Social strategies	Modifications in social interactions	Concealing oneself from
		(n = 7)	employed to cope with PD	others; social disclosure
		Spirituality	Religious or meta-physical cognitions	Surrendering to a higher
		(n = 2)	meant to cope with PD	power to weather the storm
Awareness	The level of awareness	Emerging Symptoms	Awareness of the development of physical	Noticing something is different
(n = 17)	of symptoms and	(n = 2)	or cognitive symptoms consistent
	knowledge about PD		with the diagnosis of PD
		Cognizance	Recognition of (the implications of) emerging	Interpreting the symptoms
		(n = 12)	symptoms and/ or the attendant diagnosis of PD
		Ignorance	Unawareness of (the implications of) emerging	Ignorance about the symptoms
		(n = 3)	symptoms and/ or the attendant diagnosis of PD
Disruption	Disruptions due to	Mental symptoms	Cognitive deterioration or	Mental alterations
(n = 35)	symptoms, limitations	(n = 4)	psychological alterations
	or negative emotions	Negative affect and	Fears, anxieties, depressed mood or	Fears and uncertainty about the future
	or thoughts	cognitions	ruminations arising from PD
		(n = 10)
		Physical incompetence	Loss of physical functioning	Being constrained in daily life
		(n = 15)
		Physical symptoms	Physical motor and non-motor	Loss of control over limb movements
		(n = 6)	symptoms of PD
External	The personal context	Health care support	Health care for PD	Accessibility to health care
environment	that impacts the	(n = 8)
(n = 44)	experience of	Professional changes	Changes or termination of	Early retirement or involuntary
	living with PD, or is	(n = 4)	employment due to PD	loss of employment
	changed due to PD	Social changes	Changes in socialization patterns or	Compromised social participation
		(n = 13)	relationships due to PD
		Social support	Benefits arising from social connections	Feelings of comfort with social contacts
		(n = 9)
		Stigma &shame	Negative affect relating to PD that stymies	Stigma and other feelings about PD
		(n = 10)	social or professional interaction
The changing	Changes of body-image,	Perceiving the body	Sensory experiences of the body	Controlled by or controlling the body
self	self-image and identity	(n = 8)	and attendant cognitions
(n = 34)	due to (the	Reconstructing the self	Re-articulating one’s self-concept to accord	Forming new identities
	consequences of) PD	(n = 11)	with the constraints of life with PD
		Self-image and identity	Cognitions about (aspects of) the self	A sense of being deprived
		(n = 5)		on one’s self-worth
		The eroding self	Untenable beliefs about the self	Becoming dependent on others for care
		(n = 8)
		The former self	Past events and beliefs about the self	Significant events
		(n = 2)