Qualitative feedback was captured from participants living with psoriatic arthritis (PsA) and ankylosing spondylitis (AS) regarding patient-reported outcome measures (PROMs) typically utilized in these disease states

Concepts identified by both PsA and AS participants that best reflected their experiences included fatigue, isolation, depression, inter-personal relationships, and sexual intimacy. Additionally, elements incorporated into existing PROMs, namely pain, physical function, ability to perform activities of daily living, and stiffness, were also identified as important to participants. A few qualitative differences were noted based on disease state

Based on participants’ feedback, it was felt that PROMs should be more deeply embedded in routine clinical care, thereby facilitating greater shared decision-making with healthcare providers. Isolation, depression, fatigue, and relationships with others were identified as critical concepts to include to better understand participants’ experiences living with PsA and AS