Table 1. Sociodemographic characteristics of participating PWS caregivers and individuals with PWS living in the US.
Variable | N (%) | Variable | N (%) |
---|---|---|---|
Caregivers | |||
Relationship with Child | Annual household income | ||
Parent | 201 (98.53) | Less than $10000 | 7 (3.43) |
Grandparent | 1 (0.49) | $10000 - $14999 | 11 (5.39) |
Sibling | 1 (0.49) | $15000 - $19999 | 6 (2.94) |
Legal guardian | 1 (0.49) | $20000 - $24999 | 1 (0.49) |
Age (years) | $25000 - $29999 | 3 (1.47) | |
20–29 | 10 (4.90) | $30000 - $34999 | 7 (3.43) |
30–39 | 64 (31.37) | $35000 - $39999 | 3 (1.47) |
40–49 | 74 (36.27) | $40000 - $44999 | 6 (2.94) |
50–59 | 47 (23.04) | $45000 - $49999 | 8 (3.92) |
60–69 | 7 (3.43) | $50000 - $54999 | 5 (2.45) |
70–79 | 2 (0.98) | $55000 - $59999 | 8 (3.92) |
Marital status | $60000 - $74999 | 17 (8.33) | |
Married | 171 (83.82) | $75000 - $84999 | 16 (7.84) |
Living with partner | 6 (2.94) | $85000 - $99999 | 5 (2.45) |
Divorced | 11 (5.39) | $100000 - $149999 | 54 (26.47) |
Separated | 8 (3.92) | $150000 - $199999 | 14 (6.86) |
Widow | 2 (0.98) | $200000 - $249999 | 10 (4.90) |
Single | 6 (2.94) | $250000 and above | 14 (6.86) |
Ethnicity | Don’t know | 5 (2.45) | |
Asian | 4 (1.96) | Decline to provide | 4 (1.96) |
Caucasian/ White non-Hispanic | 183 (89.71) | Individuals with PWS | |
Black / African American | 4 (1.96) | Age (years) | |
Hispanic/ Latino | 7 (3.43) | 0–4 | 53 (25.98) |
American Indian/Alaska Native | 1 (0.49) | 5–11 | 70 (34.31) |
Multi-ethnic | 3 (1.47) | 12–18 | 44 (21.57) |
Other | 1 (0.49) | 19–30 | 33 (16.18) |
Decline to answer | 1 (0.49) | 31+ | 4 (1.96) |
Household | Living situations | ||
2 | 13 (6.37) | One or both parents | 196 (96.08) |
3 | 48 (23.53) | Residential/Boarding school | 2 (0.98) |
4 | 74 (36.27) | Independent apartment/house with supports | 2 (0.98) |
5 | 42 (20.59) | Small supported living (4 or less) | 1 (0.49) |
6 | 20 (9.8) | Group home (5 or more) | 1 (0.49) |
7 | 5 (2.45) | Other | 2 (0.98) |
8 | 1 (0.49) | Time living with caregivers | |
9 | 1 (0.49) | 0–25% | 5 (2.45) |
26–50% | 1 (0.49) | ||
51–75% | 3 (1.47) | ||
76–100% | 195 (95.59) |