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. 2021 Mar 25;16(3):e0248739. doi: 10.1371/journal.pone.0248739

Table 1. Sociodemographic characteristics of participating PWS caregivers and individuals with PWS living in the US.

Variable N (%) Variable N (%)
Caregivers      
Relationship with Child   Annual household income  
    Parent 201 (98.53) Less than $10000 7 (3.43)
    Grandparent 1 (0.49) $10000 - $14999 11 (5.39)
    Sibling 1 (0.49) $15000 - $19999 6 (2.94)
    Legal guardian 1 (0.49) $20000 - $24999 1 (0.49)
Age (years)   $25000 - $29999 3 (1.47)
    20–29 10 (4.90) $30000 - $34999 7 (3.43)
    30–39 64 (31.37) $35000 - $39999 3 (1.47)
    40–49 74 (36.27) $40000 - $44999 6 (2.94)
    50–59 47 (23.04) $45000 - $49999 8 (3.92)
    60–69 7 (3.43) $50000 - $54999 5 (2.45)
    70–79 2 (0.98) $55000 - $59999 8 (3.92)
Marital status   $60000 - $74999 17 (8.33)
    Married 171 (83.82) $75000 - $84999 16 (7.84)
    Living with partner 6 (2.94) $85000 - $99999 5 (2.45)
    Divorced 11 (5.39) $100000 - $149999 54 (26.47)
    Separated 8 (3.92) $150000 - $199999 14 (6.86)
    Widow 2 (0.98) $200000 - $249999 10 (4.90)
    Single 6 (2.94) $250000 and above 14 (6.86)
Ethnicity   Don’t know 5 (2.45)
    Asian 4 (1.96) Decline to provide 4 (1.96)
    Caucasian/ White non-Hispanic 183 (89.71) Individuals with PWS
    Black / African American 4 (1.96) Age (years)  
    Hispanic/ Latino 7 (3.43) 0–4 53 (25.98)
    American Indian/Alaska Native 1 (0.49) 5–11 70 (34.31)
    Multi-ethnic 3 (1.47) 12–18 44 (21.57)
    Other 1 (0.49) 19–30 33 (16.18)
    Decline to answer 1 (0.49) 31+ 4 (1.96)
    Household   Living situations  
    2 13 (6.37) One or both parents 196 (96.08)
    3 48 (23.53) Residential/Boarding school 2 (0.98)
    4 74 (36.27) Independent apartment/house with supports 2 (0.98)
    5 42 (20.59) Small supported living (4 or less) 1 (0.49)
    6 20 (9.8) Group home (5 or more) 1 (0.49)
    7 5 (2.45) Other 2 (0.98)
    8 1 (0.49) Time living with caregivers  
    9 1 (0.49) 0–25% 5 (2.45)
    26–50% 1 (0.49)
    51–75% 3 (1.47)
    76–100% 195 (95.59)