Table 1.
Country data.
Country | Approx. Population 2020 (Million) 1 |
Approx. Number of Infants |
Number Screening Laboratories | Average Number Samples Per Lab.2 | Interval Birth-Sampling (hrs) |
Interval Sampling-Analysis (Days) |
% Infants Screened |
Information to Parents Available? |
Consent Participation? |
Consent Storage? | Length Storage (yrs) |
Normal Results Reported to Parents? |
---|---|---|---|---|---|---|---|---|---|---|---|---|
Albania (no screening) | 3.0 | 36,000 | n.a.3 | n.a. | n.a. | n.a. | n.a. | n.a. | n.a | n.a | n.a | n.a. |
Austria | 8.8 | 87,000 | 1 | 87,000 | 36–72 | 1–3 | >99.5 | yes | no | no | 10 | no |
Armenia | 3.1 | 36,000 | 2 4 | 36,000 | 48–96 | 1–5 | 99.8 | yes | yes | no | I ndef. | no |
Azerbaijan | 9.7 | 170,000 | 1 | 35,000 | 48–72 | 3–5 | 30 | yes | no | no | n.d. | n.d. |
Belarus | 9.8 | 108,000 | 1 | 108,000 | 72–120 | 1–5 | n.d. | yes | no | no | 5 | n.d. |
Belgium | 10.5 | 117,000 | 4 | 30,000 | 48–120 | 2 | 99.8 | yes | no | no | 5 | no |
Bosnia-Herzegovina | 3.3 | 28,000 | 3 4 | 9000 | 48–96 | 1–7 | 96 | no | no | no | 10 | no |
Bulgaria | 7.4 | 61,000 | 2 4 | 61,000 | 72–120 | 5–10 | n.d. | no | yes/no | no | 20 | n.d. |
Croatia | 4.2 | 36,200 | 1 | 36,200 | 48–72 | 3–5 | 100 | yes | no | no | 5 | no |
Cyprus 5 | 1.1 | 9500 | 1 | 9500 | 48–168 | 5–10 | >99.9 | yes | yes | no | 2 | no |
Czech Republic | 10.6 | 113,000 | 4 4 | 56,000 | 48–72 | 2.5 | 100 | yes | yes | no | 5 | no |
Denmark | 5.6 | 63,000 | 1 | 63,000 | 48–72 | 1–2 | 99.1 | yes | yes | yes | indef. | online |
Estonia | 1.3 | 13,500 | 1 | 13,500 | 48–72 | 2–5 | 99.55 | yes | yes | no | >25 | no |
Finland | 5.5 | 45,000 | 1 4 | 45,000 | 48–120 | 1–5 | 99 | yes | yes | no | varies | online |
France | 67 | 760,000 | 16 | 47,000 | 48–72 | 2–3 | 99.96 | yes | yes 6 | no | 1 | no |
Georgia | 3.7 | 48,500 | 1 | 48,500 | 48–72 | 14–15 | 100 | yes | no | no | 15 | no |
Germany | 80 | 787,000 | 11 | 71,000 | 36–72 | 2–3 | 100 | yes | yes | yes | <1 | no |
Greece | 10.5 | 80,000 | 1 | 89,000 | 48–72 | 6–8 | 100 | yes | no | no | 2 | no |
Hungary | 10 | 90,000 | 2 | 50,000 | 48–72 | 3–4 * | 99.99 | yes | no | no | indef. | no |
Iceland | 0.35 | 4500 | 1 | 4500 | 48–72 | 3–5 | 100 | yes | yes | yes | indef. | online |
Ireland | 4.9 | 59,700 | 1 | 59,700 | 72–120 | 1–2 | >99.5 | yes | yes | yes | 10 | no |
Israel | 9.2 | 194,000 | 1 | 194,000 | 36–72 | 1–3 | 99.8 | yes | no | no | 5 | online |
Italy | 60.5 | 434,000 | 15 | 28,900 | 48–72 | 1–4 | 96.7 | yes | no | no | 2–10 | no |
Kazakhstan | 18.7 | 402,000 | 21 | 20,000 | 24–72 | 1–2 | 96.5 | yes | yes | no | 3 | no |
Kosovo | 1.8 | 25,000 | n.a. | n.a. | n.a. | n.a. | n.a. | n.a. | n.a | n.a | n.a | n.a. |
Kyrgyzstan | 7.0 | 160,000 | 1 | 32,000 | 48–72 | 3–5 | 30 | yes | no | no | n.d. | n.d. |
Latvia | 1.9 | 20,800 | 1 | 20,000 | 48–72 | 5–7 | 98.5 | yes | yes | no | 7 | online |
Lithuania | 2.8 | 24,600 | 1 | 24,600 | 48–96 | 2–9 | 99.6 | yes | yes | no | 20 | no |
Luxembourg | 0.6 | 7200 | 1 | 7200 | 48–72 | 4 | >99 | yes | yes | no | indef. | no |
Malta | 0.48 | 4400 | 2 4 | 4400 | 72–120 | 5 | 99.7 | yes | yes | no | indef. | no |
Moldova | 3.5 | 37,400 | 1 | 37,400 | >48 | 30 | 92.3 | yes | yes | no | 0 | n.d. |
Montenegro | 0.62 | 7200 | 1 | 7200 | 24–72 | 1–3 | 100 | no | no | no | 0.5 | no |
Netherlands | 17.8 | 168,500 | 5 | 34,000 | 72–96 | 1–3 | 99.3 | yes | yes | yes | 5 | |
North Macedonia | 2.1 | 20,000 | 1 | 20,000 | 32–72 | 3 | >98 | yes | no | yes | 3 | no |
Norway | 5.3 | 55,500 | 1 | 55,500 | 48–72 | 1–3 | >99 | yes | yes | yes | indef. | no |
Poland | 38.4 | 373,000 | 6 | 62,000 | 48–96 | 3 | 99.8 | yes | yes | yes | 5 | online |
Portugal | 10.3 | 87,300 | 1 | 87,300 | 48–72 | 1–3 | 99.5 | yes | yes | no | 5 | online |
Romania 7 | 19.6 | 185,600 | 5 | 31,500 | 48–72 | 18 | 85 | yes | yes | no | 5 | no |
Russia | 142 | 1,670,000 | 78 4 | 20,000 | 48–72 | 3–5 | 90-92 | yes | yes | no | 3 | n.d. |
Serbia | 7.0 | 65,000 | 2 | 32,500 | 48–72 | 3–5 | 99 | yes | no | no | 5 | no |
Slovakia | 5.4 | 57,000 | 1 | 57,000 | 72–96 | 2–3 | 100 | yes | yes | no | indef. | no |
Slovenia | 2.07 | 20,000 | 1 | 20,000 | 48–72 | 1–2 | >99 | yes | no | no | indef. | no |
Spain | 46.5 | 372,000 | 15 | 24,800 | 24–72 | 3–10 | 99.2 | yes | yes | yes | 5-indef | |
Sweden | 10 | 116,000 | 1 | 116,000 | 48–72 | 1–3 | >99.5 | yes | yes | yes | indef. | no |
Switzerland | 8.1 | 88,000 | 1 | 88,000 | 72–96 | 2 | >99.9 | yes | yes | yes | indef. | no |
Tajikistan (no screening) | 9.4 | 291,000 | n.a. | n.a. | n.a. | n.a. | n.a. | n.a. | n.a | n.a | n.a | n.a. |
Turkey | 84.3 | 1,300,000 | 2 | 650,000 | 48–72* | 1–2 | 97 | yes | yes | yes | 5 | no |
Turkmenistan | 6.0 | 110,200 | 1 | 35,000 | 48–72 | 3–5 | 30 | yes | no | no | n.d. | n.d. |
United Kingdom | 66.6 | 760,000 | 16 | 47,500 | 120 | 3–4 | 96.5 | yes | yes | no | >5 | |
Ukraine | 43.7 | 393,000 | 7 | 56,100 | 48–72 | 3 | n.d. | yes | yes | n.a. | <0.5 | |
Uzbekistan | 31.3 | 760,600 | 14 | 54,000 | 72–96 | 10. | 95 | yes | yes | n.d. | 1 | n.d. |
Colour indications countries: EU member (brown), candidate EU member (fuchsia), potential candidate EU member (green), EFTA member (blue), Europe-other (purple). 1 https://worldpopulationreview.com/ (visited 14 November 2020); 2 in larger countries, numbers vary largely; 3 n.d. = no data; n.a. = not applicable; 4 not all laboratories carry out the whole screening panel; 5 data regarding northern part of the Cyprus island not included; 6 France only consented to cystic fibrosis transmembrane conductance regulator (CFTR) analysis; 7 Romania total newborns includes Romanian infants born elsewhere; % screened excludes private labs.