TABLE 2.
Descriptive statistics of PROMIS and legacy measures for patient and caregivers
| PROMIS | Patients Mean (St Dev) % at Floor (Worst); % at Ceiling (Best), Multi-Item Scales Only | Caregivers Mean (St Dev) % at Floor (Worst); % at Ceiling (Best), Multi-Item Scales Only | Legacy | Patients Mean (St Dev) % at Floor (Worst); % at Ceiling (Best), Multi-Item Scales Only | Caregivers Mean (St Dev) % at Floor (Worst); % at Ceiling (Best), Multi-Item Scales Only |
|---|---|---|---|---|---|
| PROMIS-29 physical function profile v1.0 (4 items) | 41.18 (7.84) 1.57%; 10.98% | 53.17 (6.94) 0%; 73.74% | SF-36 physical function (10 items) | 40.53 (9.52) 0.39%; 2.34% | 52.79 (7.89) 0%; 42.78% |
| PROMIS-29 pain interference profile v1.0 (4 items) | 55.80 (9.47) 2.35%; 23.92% | 47.05 (7.52) 0.56%; 61.11% | SF-36 bodily pain (2 items) | 45.01 (10.35) 2.35%; 11.76% | 54.60 (8.78) 0%; 44.44% |
| PROMIS-29 pain severity profile v1.0 (1 item) | 3.60 (2.71) | 1.63 (2.03) | MDASI pain severity (1 item, patient) | 3.57 (3.16) | - |
| PROMIS-29 fatigue profile v1.0 (4 items) | 58.76 (8.98) 4.31%; 2.35% | 47.28 (8.11) 0.56%; 13.97% | SF-36 vitality (4 items) | 43.92 (10.29) 1.57%; 0.78% | 55.67 (7.94) 0%; 3.89% |
| - | - | MDASI fatigue severity (patient, 1 item) | 5.83 (2.73) | - | |
| PROMIS-29 sleep disturbance profile v1.0 (4 items) | 53.37 (8.24) 2.75%; 2.35% | 45.56 (8.03) 0%; 12.78% | MDASI disturbed sleep (patient, 1 item) | 4.76 (3.26) | - |
| - | - | PSSQ-I sleep quality (caregiver, 5 items) | - | 8.07 (6.42) 1.12%;17.32% | |
| - | - | PSSQ-I sleep interference (caregiver, 8 items) | - | 13.87 (6.28) 0.70%; 9.79% | |
| PROMIS-29 depression profile v1.0 (4 items) | 50.46 (8.10) 0.39%; 33.86% | 45.14 (6.97) 1.11%; 67.22% | CES-D (20 items) | 15.13 (10.52) 0%; 2.76% | 6.89 (7.94) 0%; 13.33% |
| - | - | MDASI sadness severity (patient, 1 item) | 3.22 (3.13) | - | |
| - | - | MDASI distress severity (patient, 1 item) | 3.80 (3.05) | - | |
| - | - | SF-36 mental health (5 items) | 49.62 (9.30) 0%; 4.31% | 54.82 (7.88) 0%; 8.33% | |
| PROMIS-29 anxiety profile 1.0 (4 items) | 52.69 (8.82) 0.40%; 23.32% | 48.08 (8.48) 1.12%; 43.58% | State anxiety (20 items) | 34.33 (11.67) 0%; 9.06% | 28.97 (10.54) 0%; 22.22% |
| PROMIS-29 satisfaction with participation in social roles profile v1.0 (4 items) | 45.13 (8.40) 7.45%; 7.06% | 55.42 (7.78) 0.56%; 34.44% | SF-36 social functioning (2 items) | 43.79 (10.88) 2.35%; 22.75% | 53.66 (6.61) 0%; 67.78% |
| PROMIS short form v2.0—ability to participate in social roles and activities (4 items) | 56.37 (7.55) 0%; 39.66% |