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. Author manuscript; available in PMC: 2022 Apr 1.
Published in final edited form as: Ann Epidemiol. 2020 Nov 27;56:61–69.e3. doi: 10.1016/j.annepidem.2020.11.007

Appendix Table 1.

Congenital diaphragmatic hernia surveillance period, by country, registry, and type of registry, International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR).

Country Registry Surveillance Years (1974 – 2015)
74–77 78–79 80 81–85 86–90 91 92 93 94 95 96 97 98 99 00 01 02 03 04–08 09 10 11 12 13 14 15 N3
Hospital-Based Registries
Argentina RENAC 6
Colombia Bogotá 15
Colombia Cali 4
S. America ECLAMC 20
Spain ECEMC1 28
Mexico RYVEMCE 36
Iran TROCA 9
Israel SMC 15
Population-Based Registries
Costa Rica CREC 15
Czech Rep. National 21
France Paris 34
Germany Saxony Anhalt 35
Italy Lombardy 10
Italy Tuscany 22
Malta MCAR 19
Netherlands Northern 34
Slovak Rep. National 14
Sweden National2 28
Ukraine OMNI-Net 14
UK Wales 17
Mexico Nuevo León 5
USA Arkansas 20
USA Atlanta 39
USA Texas 17
USA Utah 14
1

Spain included information on elective termination of pregnancy for fetal anomalies from 1995–2014

2

Sweden included information on elective terminations of pregnancy for fetal anomalies from 1999–2014

3

Number of surveillance years.

CREC=Costa Rican Birth Defect Registry; ECEMC=Spanish Collaborative Study of Congenital Malformations; ECLAMC=Latin American Collaborative Study of Congenital Malformations; MCAR=Malta Congenital Anomalies Registry; OMNI-Net=Ukraine Birth Defects Prevention Program; RENAC=National Network of Congenital Anomalies of Argentina; RYVEMCE=Mexican Registry and Epidemiological Surveillance of External Congenital Malformations; TROCA=Tabriz Registry of Congenital Anomalies; SMC=Soroka Medical Center; UK=United Kingdom; USA=United States of America.