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. Author manuscript; available in PMC: 2022 Apr 1.
Published in final edited form as: Ann Epidemiol. 2020 Nov 27;56:61–69.e3. doi: 10.1016/j.annepidem.2020.11.007

Table 1b.

Description of program follow-up method for live births by registry type.

Country-Registry Follow-up until discharge from the maternity hospital Follow-up by a clinician or registry staff Linkage with death certificates Maximum follow-up period reported in study
Hospital-Based Registries
Argentina-RENAC Yes Yes No 2–6 days
Colombia-Bogotá Yes Yes No 1 day
Colombia-Cali Yes Yes No No mortality reported for livebirths
South America-ECLAMC Yes Yes No 28–364 days
Spain-ECEMC Yes1 No No 2–6 days
Mexico-RYVEMCE Yes No No 2–6 days
Iran-TROCA Yes Yes3 No 2–6 days
Israel-SMC Yes No Yes, up to 2014 28–364 days
Population-Based Registries
Costa Rica-CREC No No Yes5 ≥5 years
Czech Republic No No Yes ≥5 years
France-Paris Yes Yes No 7–27 days
Germany-Saxony Anhalt Yes Yes4 No ≥5 years
Italy-Lombardy No No Yes, up to 2015 7–27 days
Italy-Tuscany No No Yes, up to 2015 28–364 days
Malta-MCAR Yes2 No Yes6 ≥5 years
Netherlands-Northern Yes Yes No ≥5 years
Slovak Republic Yes No No 7–27 days
Sweden No No Yes, up to April 2016 ≥5 years
Ukraine-OMNI-Net Yes Yes No 28–364 days
United Kingdom-Wales Yes No Yes, to GP system, till 18 years ≥ 5 years
Mexico-Nuevo León Yes No No ≥5 years
USA-Arkansas Yes No Yes, up to 2015 ≥5 years
USA-Atlanta Yes No Yes, up to 2008 ≥5 years
USA-Texas Yes No Yes, up to 2013 ≥5 years
USA-Utah Yes No Yes, until age 2 ≥5 years
1

the participating physicians in the program are especially focused on the ascertainment of birth defects

2

babies are followed up until discharge and their hospital files are again seen at 1 year of age, linkage with mortality data continues indefinitely

3

children in university hospital(s)

4

until 18 years

5

just for reported cases

6

continuous linkage with mortality register, for this study data has linkage up to 2015.

CREC=Costa Rican Birth Defect Registry; ECEMC=Spanish Collaborative Study of Congenital Malformations; ECLAMC=Latin American Collaborative Study of Congenital Malformations; GP=General Practitioner; MCAR=Malta Congenital Anomalies Registry; OMNI-Net=Ukraine Birth Defects Prevention Program; RENAC=National Network of Congenital Anomalies of Argentina; RYVEMCE=Mexican Registry and Epidemiological Surveillance of External Congenital Malformations; TROCA=Tabriz Registry of Congenital Anomalies; SMC=Soroka Medical Center; USA=United States of America