TABLE 4.

Summary of participants (patients with rare diseases and their family members) who were hospitalized with COVID‐19 (n = 17) ^a

Participant	Age (years)	Persons in household (n)	ICD‐10	Condition	Region of origin	Hospitalization
						At dedicated COVID‐19 unit	At intensive care	Intubation
C1	<18	4	E70	Phenylketonuria	Southeast	No	Yes	No
C2	<18	≥6	E70	Phenylketonuria	North	Yes	No	No
C3	<18	3	E71.0	Maple syrup urine disease	South	Yes	No	No
C4	<18	≥6	E72.4	Ornithine transcarbamylase deficiency	Southeast	No	Yes	No
C5	<18	4	E75.2	Niemann‐Pick disease type C	Northeast	Yes	No	No
C6	<18	4	Q78.0	Osteogenesis imperfecta	Southeast	Yes	No	No
C7	18–64	3	E27.1	Addison disease	Southeast	No	Yes	No
C8	18–64	5	E75.2	Niemann‐Pick disease type C	Northeast	Yes	No	No
C9	≥65	3	G12.2	Amyotrophic lateral sclerosis	Southeast	No	Yes	No
P1	18–64	4	D83	Common variable immunodeficiency	Southeast	Yes	No	No
P2	18–64	5	G12.2	Amyotrophic lateral sclerosis	South	No	Yes	No
P3	18–64	2	G35	Multiple sclerosis	North	Yes	No	No
P4	18–64	4	G37.3	Acute transverse myelitis	South	Yes	No	No
P5	18–64	3	G71.1	Steinert myotonic dystrophy	Northeast	No	Yes	No
P6	18–64	4	G71.3	MELAS syndrome	Southeast	Yes	No	No
P7	18–64	4	G71.3	Mitochondrial myopathy	South	Yes	No	No
P8	18–64	3	G71.3	Mitochondrial myopathy	Southeast	No	Yes	Yes

Abbreviations: C, caregiver; P, patient.

^a This table refers to the question: “Have you—or the patient you take care of—been hospitalized due to COVID‐19?”. Thus, when the questionnaire was completed by the caregiver (C1 to C9), we were unable to establish whether the patient, the caregiver, or both had COVID‐19.