Participants’ responses to prompted question for signs and symptoms of CNS tumors.

Signs and Symptoms	Method of Administration
	Personal						Online
	Y		N		DK		Y		N		DK
	n	(%)	n	(%)	n	(%)	n	(%)	n	(%)	n	(%)
Not eating or having a poor appetite	908	60.5	329	21.9	252	16.8	766	51.1	428	28.5	306	20.4
Experiencing abnormal involuntary movements	1223	81.5	158	10.5	114	7.60	1315	87.7	84	5.60	101	6.73
Difficulty in awareness and learning	839	55.9	427	28.5	229	15.3	863	57.5	437	29.1	200	13.3
Congenital anomaly of brain	670	44.7	460	30.7	362	24.1	456	30.4	715	47.7	329	21.9
Drowsiness or prolonged sleepiness	857	57.1	357	23.8	275	18.3	843	56.2	393	26.2	264	17.6
Think back pain, back stiffness, odd posture	577	38.5	591	39.4	327	21.8	489	32.6	676	45.1	335	22.3
Excessive emotional problems	390	26.0	784	52.3	321	21.4	311	20.7	889	59.3	300	20.0
Arm paralyzed, monoplegia, muscle weakness	782	52.1	370	24.7	343	22.9	768	51.2	439	29.3	293	19.5
Physical delay	612	40.8	513	34.2	371	24.7	521	34.7	636	42.4	343	22.9
Unusual head tilt or stiff neck	686	45.7	438	29.2	372	24.8	755	50.3	435	29.0	310	20.7
Clumsiness loss of balance	1125	75.0	192	12.8	179	11.9	1261	84.1	127	8.47	112	7.47
Deafness	684	45.6	469	31.3	345	23.0	823	54.9	422	28.1	255	17.0
Headaches	1220	81.3	150	10.0	127	8.47	1335	89.0	79	5.27	86	5.73
Visual impairment	870	58.0	343	22.9	276	18.4	1054	70.3	281	18.7	165	11.0
Enlarged head development	727	48.5	349	23.3	416	27.7	708	47.2	459	30.6	333	22.2
Loss of bladder/bowel control	269	17.9	660	44.0	561	37.4	166	11.1	861	57.4	473	31.5
Behaviour problems, personality change, constant confusion	374	24.9	631	42.1	486	32.4	336	22.4	776	51.7	388	25.9
Vomiting without diarrhoea	512	34.1	487	32.5	496	33.1	574	38.3	572	38.1	354	23.6
Loss of weight	787	52.5	351	23.4	361	24.1	857	57.1	369	24.6	274	18.3

Y - yes, N - no, DK - do not know