Table 2.
Characteristics of study participants
| Characteristics | CD (n = 1535) | UC (n = 2919) | IBD (N = 4806) |
|---|---|---|---|
| Age at IBD diagnosis | |||
| 65–74 years, n (%) | 1013 (66.0%) | 1833 (62.8%) | 3056 (63.6%) |
| 75–84 years, n (%) | 450 (29.3%) | 942 (32.3%) | 1517 (31.6%) |
| ≥85 years, n (%) | 72 (4.7%) | 144 (4.9%) | 233 (4.8%) |
| Female sex, n (%) | 916 (59.7%) | 1576 (54.0%) | 2702 (56.2%) |
| Mean neighbourhood income quintile, n (%) | |||
| Q1 (lowest) | 254 (16.5%) | 556 (19.0%) | 874 (18.2%) |
| Q2 | 327 (21.3%) | 603 (20.7%) | 1004 (20.9%) |
| Q3 | 313 (20.4%) | 583 (20.0%) | 973 (20.2%) |
| Q4 | 313 (20.4%) | 526 (18.0%) | 901 (18.7%) |
| Q5 (highest) | 328 (21.4%) | 651 (22.3%) | 1054 (21.9%) |
| Urban household, n (%) | 1320 (86.0%) | 2473 (84.7%) | 4088 (85.1%) |
| ADG tertile, n (%) | |||
| Q1 (lowest) | 558 (36.4%) | 1096 (37.5%) | 1773 (36.9%) |
| Q2 | 499 (32.5%) | 946 (32.4%) | 1573 (32.7%) |
| Q3 (highest) | 478 (31.1%) | 877 (30.0%) | 1460 (30.4%) |
| Having ever seen a gastroenterologist within 1 year of diagnosis, n (%) | 1243 (81.0%) | 2341 (80.2%) | 3848 (80.1%) |
| Having a gastroenterologist as the primary provider of care in the first year after diagnosis, n (%) | 1104 (71.9%) | 2138 (73.2%) | 3483 (72.5%) |
| IBD-related ED visit ± 1 month from diagnosis, n (%) | 432 (28.1%) | 652 (22.3%) | 1149 (23.9%) |
| IBD-related hospitalization ± 1 month from diagnosis, n (%) | 415 (27.0%) | 527 (18.1%) | 994 (20.7%) |
| Distance to primary provider of IBD-specific outpatient care | |||
| Mean (SD) | 16.59 (44.20) | 18.52 (51.17) | 18.28 (50.58) |
| Median (Q1-Q3) | 6 (3–13) | 6 (3–16) | 6 (3–15) |
| Time to IBD diagnosis, n (%)* | |||
| <1 month | 159 (10.4%) | 85 (2.9%) | 273 (5.7%) |
| 1 month to <6 months | 102 (6.6%) | 71 (2.4%) | 199 (4.1%) |
| 6 months to <12 months | 662 (43.1%) | 1859 (63.7%) | 2699 (56.2%) |
| ≥12 months | 608 (39.6%) | 903 (30.9%) | 1629 (33.9%) |
| IBD-specific health services utilization, n (%) | |||
| ED visit within 1 year of diagnosis | 240 (15.6%) | 365 (12.5%) | 629 (13.1%) |
| ED visit within 5 years of diagnosis | 427 (27.8%) | 624 (21.4%) | 1092 (22.7%) |
| Hospitalization within 1 year of diagnosis | 504 (32.8%) | 632 (21.7%) | 1194 (24.8%) |
| Hospitalization within 5 years of diagnosis | 692 (45.1%) | 900 (30.8%) | 1674 (34.8%) |
| IBD-related surgery, n (%) | |||
| Intestinal resection or colectomy within 1 year of diagnosis | 312 (20.3%) | ||
| Intestinal resection or colectomy within 5 years of diagnosis | 529 (34.5%) | ||
| Colectomy within 1 year of diagnosis | 320 (11.0%) | ||
| Colectomy within 5 years of diagnosis | 543 (18.6%) |
ADG, Ambulatory Diagnostics Group; CD, Crohn’s disease; ED, emergency department; IBD, inflammatory bowel disease; SD, standard deviation; UC. ulcerative colitis.
*Time to diagnosis was missing for six patients.