Table 2.
Results of Content Analysis from Design (I) and User-Testing Phases (II) and Design Responses
| Phase I: Patient Feedback during Content and Design Decision-Making (n=42) | |||||||||
|---|---|---|---|---|---|---|---|---|---|
| Breast | CRC | Prostate | Total | ||||||
| N | % | N | % | N | % | N | % | Selected Quotes | |
| Want a HC | 26 | 79 | 4 | 80 | 3 | 50 | 34 | 80.9 | “Sometimes you’re the last person to worry about you, and think kind of will push you.” BC 010 |
| Top five uses among survivors who want HC (n=34) | |||||||||
| Emotional support | 14 | 54 | 0 | 0 | 1 | 30 | 15 | 44.1 | “Having a coach that helps you, encourages you and motivates you to stay on the right track…” BC 008 |
| Support general health | 8 | 31 | 3 | 75 | 0 | 0 | 12 | 35.3 | “Someone who is knowledgeable, and I can ask all my questions to because I don’t even know what questions I need to ask.” BC 056 |
| Diet/exercise | 7 | 26.9 | 3 | 75 | 0 | 0 | 10 | 29.4 | “It would have been good if I had somebody to lead me through all of that [rather] than me going through it alone.” BC 064 |
| Accountability/motivation | 5 | 19.2 | 1 | 25 | 2 | 66.6 | 8 | 23.5 | “Everybody needs a prod in the right direction.” PC 007 |
| Info about treatment effects | 5 | 19.2 | 1 | 25 | 0 | 0 | 6 | 17.7 | “…direct you to resources that you might need along the way..” BC Oil |
| Top Concerns about HC among survivors who want HC (n=34) | |||||||||
| Too busy and/or calls too frequent | 5 | 19.2 | 1 | 25 | 1 | 25 | 7 | 20.6 | “constant repetition of calls…” CRC 001 |
| HC characteristics | 4 | 15.4 | 0 | 0 | 2 | 50 | 6 | 17.7 | “Not knowing who the coach is..” PC 006 |
| Approach of HC | 6 | 23.1 | 0 | 0 | 0 | 0 | 6 | 17.7 | “Might be too pushy…” BC 10 |
| Not customized | 1 | 3.8 | 1 | 25 | 1 | 25 | 3 | 8.8 | “It would have to be patient specific.” CRC 005 |
| Top Reason Survivors did not want HC (n=8) | |||||||||
| Doesn’t think they need one | 3 | 100 | 1 | 50 | 75 | 7 | 87.5 | “I am more self-reliant than relying on others…”PC 003 | |
| Phase II: User Testing Top Functions of Health-Coaching Prototype (n=9) | |||||||||
| Breast | CRC | Prostate | Total | ||||||
| N | % | N | % | N | % | N | % | ||
| Symptom-tracker connected to information | 4 | 80 | 1 | 50 | 1 | 100 | 6 | 66.7 | “Symptom-based checklist that directs me to educational material” [best feature of prototype] UT 001, AA woman, age 59, dx 2009 |
| Organization of the HC calls | 3 | 60 | 0 | 0 | 1 | 100 | 4 | 44.4 | “That the manual is organized by call” UT 003, AA woman, age 47, dx 2009 |
| Developing goals/plan | 4 | 80 | 0 | 0 | 1 | 100 | 4 | 44.4 | “Forces you to stop and think about your goals… ” UT 002 AA woman, age 65, dx 2014 |
| Phase III: Salient Concerns from Phase I and II and Design Responses | |||||||||
| Concern | Nature of Concern | Design Response | |||||||
| Too busy/time commitment | • calls come in when busy • not having time for call despite scheduling • finding 20 minutes when house quiet enough |
✓ Flexible scheduling guided by patient preference ✓ Calls range from 15-20 minutes ✓ Flexible about what patient needs to be attentive without too many constraints |
|||||||
| Too information dense | • ‘This is a lot of work’ • [manual] is ‘voluminous” • Amount of reading in manual |
✓ Further condensed information sheets and worksheets ✓ Orient HC participants to manual during 1st call clarifying how to use print material ✓ Focus on what can be done for specific problems |
|||||||
| HC approach | • Judgmental, pushy, nagging or preachy HCs | ✓ Non-judgmental, encouraging stance ✓ Trained on key issues faced by cancer survivors |
|||||||
| Customization | • General problems that aren’ tailored to cancer or problems that are important to patients | ✓ Program tailored by cancer site (and sex for CRC), symptoms, patient goals/priorities | |||||||
Acronym key: BC=Breast cancer; CRC=Colorectal Cancer, dx=diagnosed; HC=Health-Coaches, PC=Prostate Cancer; UT=User Tester
*
Note: denominators are based on number of participants who answered the question