TABLE 2.
Patient responses (%) and mean scores for each IEXPAC item.
| IEXPAC item | Patient responses (%) | Mean score | ||||
|---|---|---|---|---|---|---|
| Always | Mostly | Sometimes | Seldom | Never | ||
|
1. They respect my lifestyle The professionals who care of me listen to me and ask me about my needs, habits and preferences to adapt my treatment and care plan |
51.2 | 30.7 | 12.2 | 3.2 | 2.7 | 8.1 ± 2.4 |
| 81.9 | 5.9 | |||||
|
2. They are coordinated to offer good health care to me Health and social care services are coordinated to improve my well‐being and quality of life in my environment (family, neighbourhood, town). |
44.1 | 29.6 | 11.0 | 5.2 | 10.1 | 7.3 ± 3.2 |
| 73.7 | 15.3 | |||||
|
3. They help me to get information from the Internet The professionals who care for me inform me about trustful webpages and Internet forums that I can consult to know my disease better, its treatment and the consequences they may have on my life. |
5.1 | 3.2 | 10.0 | 13.0 | 68.7 | 1.6 ± 2.8 |
| 8.3 | 81.7 | |||||
|
4. Now I can take care of myself better I feel that my confidence in my ability to take care of myself, manage my health problems and keep my autonomy has improved. |
43.4 | 34.9 | 17.5 | 1.9 | 2.4 | 7.9 ± 2.3 |
| 78.3 | 4.3 | |||||
|
5. They ask me and help me to follow my treatment plan I regularly review adherence to my treatment and care plan with the professionals who care for me. |
52.2 | 26.0 | 15.1 | 2.3 | 4.4 | 8.0 ± 2.7 |
| 78.2 | 6.7 | |||||
|
6. We set goals for a healthy life and better control my illness I’ve been able to agree with the professionals who care for me on specific objectives regarding diet, physical exercise and medication to get better control of my health problems. |
47.3 | 28.8 | 14.8 | 4.6 | 4.4 | 7.8 ± 2.7 |
| 76.1 | 9.0 | |||||
|
7. I can use the Internet and my mobile phone to consult my medical records I can consult my clinical record, tests results, programmed visits and access to other services through the Internet or the mobile app of my health service. |
3.8 | 3.3 | 6.4 | 7.1 | 79.5 | 1.1 ± 2.5 |
| 7.1 | 86.6 | |||||
|
8. They make sure that I take medication correctly The professionals who care for me review with me all of the medication I take, how I take it and how it suits me. |
51.4 | 21.6 | 13.8 | 5.7 | 7.6 | 7.6 ± 3.1 |
| 73.0 | 13.3 | |||||
|
9. They worry about my welfare The professionals who care for me are concerned with my quality of life and I feel they are committed to my well‐being |
59.4 | 24.4 | 11.2 | 2.7 | 2.3 | 8.4 ± 2.4 |
| 83.8 | 5.0 | |||||
|
10. I have been informed on health and social resources that can help me The professionals who care for me inform me about health and social resources available in my neighbourhood or town that I can use to improve my health problems and take better care of myself. |
26.7 | 15.6 | 22.9 | 12.1 | 22.7 | 5.3 ± 3.7 |
| 42.3 | 34.8 | |||||
|
11. They encourage me to talk to other patients The professionals who care for me invite me to participate in patients groups to share information and experiences on how to care for ourselves and improve our health. |
5.7 | 6.2 | 19.1 | 16.5 | 52.4 | 2.4 ± 3.0 |
| 11.9 | 68.9 | |||||
|
Respond to the following statement only if you have been admitted to the hospital in the last 3 years 12. They care about me when I come home after being in the hospital After hospital discharge, they have called or visited me at home to see how I was and what care I needed. |
24.5 | 8.3 | 13.0 | 7.5 | 46.6 | 3.9 ± 4.2 |
| 32.8 | 54.1 | |||||
‘Productive Interactions’ factor: items 1, 2, 5 and 9; ‘New Relational Model’ factor: items 3, 7 and 11; ‘Patient Self‐Management’ factor: items 4, 6, 8 and 10