Table 3.
Recruitment strategies and yield across the eight Sickle Cell Disease Implementation Consortium sites
| All sites | Site 1 | Site 2 | Site 3 | Site 4 | Site 5 | Site 6c | Site 7 | Site 8e | |
|---|---|---|---|---|---|---|---|---|---|
| N (%) | N (%) | N (%) | N (%) | N (%) | N (%) | N (%) | N (%) | N (%) | |
| Clinic visit | 1650 (68.1) | 239 (79.7) | 201 (66.8) | 209 (69.9) | 148 (49.3) | 305 (100.0) | 109 (36.1) | 170 (55.0)d | 269 (87.9) |
| Affiliated sites | 377 (15.6) | 61 (20.3) | 1 (0.3) | 31 (10.4) | 55 (18.3) | 0 | 166 (55.0) | 61 (19.7) | 2 (0.7) |
| Targeted phone calls | 144 (5.9) | 0 | 0 | 47 (15.7) | 35 (11.7) | 0 | 2 (0.7) | 56 (18.1) | 4 (1.3) |
| Hospital in-patient | 141 (5.8) | 0 | 68 (22.6) | 12 (4.0) | 32 (10.7) | 0 | 10 (3.3) | 0 | 19 (6.2) |
| Community event | 52 (2.1) | 0 | 5 (1.7) | 0 | 8 (2.7) | 0 | 8 (2.6) | 19 (6.1) | 12 (3.9) |
| Pain/infusion center | 25 (1.0) | 0 | 22 (7.3) | 0 | 1 (0.3) | 0 | 0 | 2 (0.6) | 0 |
| Emergency department | 14 (0.6) | 0 | 1 (0.3) | 0 | 13 (4.3) | 0 | 0 | 0 | 0 |
| Othera | 19 (0.8) | 0 | 3 (1.0) | 0 | 8 (2.7) | 0 | 7 (2.3) | 1 (0.3) | 0 |
| Total (non-missing responses) | 2,422 | 300 | 301 | 299 | 300 | 305 | 302 | 309 | 306 |
| Missingb | 10 | 0 | 3 | 6 | 0 | 1 | 0 | 0 | 0 |
aOther refers to recruitment at other medical visits and in-person interviews
bMissing refers to survey items with no response
cSite 6 approached 386 individuals overall, 302 individuals were enrolled
dSite 7 approached 173 individuals in the clinic, 3 declined due to various reasons: (1) not interested in the study, (2) time constraints, (3) a minor and their parents declined participation)
eSite 8 approached 312 people overall, 5 declined participation, one was not eligible, 306 individuals consented and were enrolled