Table 4.

Rare Diseases Funding Resources

Rare Diseases Clinical Research Network (RDCRN) program at NCATS https://ncats.nih.gov/rdcrn/about

Therapeutics for Rare and Neglected Diseases (TRND) program. https://ncats.nih.gov/trnd/about

Genetics and Rare Diseases Information Center (GARD) https://ncats.nih.gov/gard

National Organization of Rare Diseases (NORD) https://rarediseases.org/for-clinicians-and-researchers/research-opportunities/research-grant-program/.

Rare Diseases Registry Program (RaDaR) Program https://ncats.nih.gov/radar

FDA Clinical Trials Grants Program from Office of Orphan Product Development (https://www.fda.gov/aboutfda/centersoffices/officeofmedicalproductsandtobacco/officeofscienceandhealthcoordination/ucm2018190.htm)

International Rare Diseases Research Consortium http://www.irdirc.org/

Patient advocacy groups