Table 1.

Respondents’ socio-demographic and patients’ clinical characteristics (N = 220)

Characteristic	N	%
Survey respondent
Self	150	68.2
Caregiver	70	31.8
Patient/respondent’s level of education
None	48	21.8
Primary	123	55.9
Secondary or higher	44	20.0
Missing data	5	2.3
Patient’s district
Kayonza	75	34.1
Kirehe	80	36.4
Burera	65	29.6
Patient’s gender
Male	83	37.7
Female	137	62.3
Patient’s age (years)
< 5	28	12.7
5–17	9	4.1
18–35	34	15.5
36–59	79	35.9
> =60	36	16.4
Missing data	34	15.5
Patient’s marital status
Married	81	36.8
Cohabiting	16	7.3
Widowed	28	12.7
Divorced	6	2.7
Single - adult	33	15.0
Child	56	25.5
Socio-economic status (Ubudehe category)
1	38	17.3
2	82	37.3
3	98	44.6
Unknown	2	0.9
Patient’s clinical program
HIV/AIDS	49	22.3
Non-communicable Disease (NCD)	50	22.7
Mental Health (MH)	43	19.6
Pediatric Development Clinic (PDC)	47	21.4
Oncology	31	14.1
Patient’s diagnosesa
HIV/AIDS	50	22.7
Diabetes type 1	8	3.6
Diabetes type 2	9	4.1
Hypertension	47	21.4
Heart failure	2	0.9
Asthma	14	6.4
Cancer	32	14.6
Mental illnesses	43	19.6
PDC (Prematurity, low birth weight, hypoxic ischemic encephalopathy (HIE), etc.)	47	21.4
Was the patient prescribed medication to help manage health at home?
No	49	22.3
Yes	171	77.7
Estimated time (in hours) from the patient’s home to the health facility of usual health-care
< 1 h	78	35.4
1–2 h	100	45.5
> 2 h	42	19.1
Was the patient living with someone who could help remind the patient to take medication or accompany the patient to the health facility?
No	49	22.3
Yes	167	75.9
Missing data	4	1.8

^aIt was possible for one patient to have multiple diagnoses