Table 1.

Registered fields for the proposed nation-wide OPMD patient registry in Japan.

Basic Items	Name
	Date of birth
	Nationality
	Address
	Participation in patients’ association
	Proposal for clinical trials
Clinical items	Presence or absence of family history
	Consanguinity
	Muscle histology (rimmed vacuoles, intranuclear aggregates)
	(GCN)n repeat-length
	Height and weight
	Age at onset
	Initial symptoms
	Age at ptosis
	Age at diplopia
	Age at dysarthria
	Age at dysphagia
	Age at diet restrictions/alterations
	Age at tube feeding
	Age at lower proximal weakness
	Age at gait disorder
	Age at upper proximal weakness
	Any other complications including neuropathy
	Respiratory (% vital capacity and % forced vital capacity)
	Cardiac functions (% ejection fraction and % fractional shortening)
	Electrocardiography
	Serum CK levels