Official websites use .gov
A
.gov website belongs to an official
government organization in the United States.
Secure .gov websites use HTTPS
A lock (
) or https:// means you've safely
connected to the .gov website. Share sensitive
information only on official, secure websites.
Number of free text responses containing content relating to key themes, stratified by family satisfaction of diagnosis experience.
| Theme | Extremely/Satisfied (n) | Neutral (n) | Extremely/Dissatisfied (n) | |
|---|---|---|---|---|
| Health Professional Communication | Communicative | 12 | 1 | 1 |
| On-going | 7 | 1 | ||
| Non-communicative | 4 | 8 | ||
| Accidental/Indirect | 3 | 6 | ||
| Time to diagnosis | Early/ongoing | 8 | 3 | 3 |
| Delayed/withheld | 4 | 1 | 8 | |
| Support | Navigation | 8 | 4 | 5 |
| Family & social support | 28 | 10 | 16 |
