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. 2021 Feb 6;3(2):193–205.e1. doi: 10.1016/j.xkme.2020.11.010

Table 2.

Priorities and Needs Elicited in My Dialysis Plan Care Plan Meetings

Topics Meetings (N = 54)
Medical 45 (83%)

Physical symptoms

  • Fatigue, energy, shortness of breath, weakness, pain, constipation, poor appetite, syncope, decreased libido

27 (50%)

Transplant

  • Interest, education, evaluation, unsure of status (listed/unlisted %)

16 (30%)

Services

  • Physical therapy, occupational therapy, mental health therapy, home health

10 (19%)

Mood symptoms

  • Hopelessness, depression, anxiety, fear

9 (17%)

Medications

  • Questions, needs

7 (13%)

Medical concerns

  • Forgetfulness, pain management, impaired vision, reduced hand dexterity

7 (13%)

Care coordination

  • Updated skilled nursing facility orders, scheduling of other care around dialysis

4 (7%)
Psychosocial 34 (63%)

Social support

  • Spend time with family, attend church, host events, visit friends, cook for neighbors

25 (46%)

Independence

  • Driving, relocating, self-sufficiency for activities of daily living and/or finances, vocational rehabilitation

16 (30%)

Financial

  • SSDI/SSI applications, community resources, insurance

8 (15%)

Transportation

  • Medical appointments, social gatherings, volunteering, work, shopping

8 (15%)

Housing and food

  • Housing and food insecurity; skilled nursing, assisted living, senior care options

7 (13%)
Personal 23 (43%)

Hobbies

  • Video-gaming, bowling, going out to eat, camping, horseback riding, yardwork, music, painting, backpacking, driving, gardening, fishing

16 (30%)

Physical activity

  • Exercise, play sports, hike, ride bike, climb flight of stairs

12 (22%)

Travel

  • Local, distance, dialysis planning

9 (17%)

Note: Data reflective of both patient-identified and care team–identified priorities, all discussed during the care plan meeting.

Abbreviations: SSDI, Social Security Disability Insurance; SSI, Supplemental Security Income.