Table 1.

Description of the ePROM plus graphical display and ePROM alone interventions*

Clinic	Mode of administration	ePROM+graphical display (intervention group)			ePROM alone (comparison group)			Intervention period
		Content duration frequency			Content duration frequency
Burn scar clinic	Administered remotely using email or by a research occupational therapist in the clinic setting. PROM data collected electronically on a device at home or on an Apple iPad in the clinic.	PedsQL generic and infant scales BBSIP CARe scales	Approx. 15 min for child and parent participants to complete ePROMs prior consultations. Up to 15 min to download, print and deliver ePROMs and graphical displays to consultations.	Delivered in consultations up to 1×/month. Based on usual care likely to be delivered 2–3×.	ePROMs delivered and completed as per intervention group. No graphical summaries provided in consultations.†	Approximately 15 min for child and parent participants to complete ePROMs prior to each consultation. Up to 5 min to download, print and deliver ePROM.	As per intervention group	Baseline–6 months‡
Vascular clinic	As per burn scar clinic	PedsQL infant scales Hemangioma Family Burden questionnaire Infantile Haemangioma Quality-of-Life Instrument	Approx. 10 min for parent participants to complete ePROMs prior to each consultation. Up to 10 min to download, print and deliver ePROMs and graphical displays to consultations.	Delivered in consultations up to 1×/month. Based on usual care likely 1–2×.§	ePROMs delivered and completed as per intervention group. No graphical summaries provided in consultations.†	Approximately 10 min for child and parent participants to complete ePROMs prior to each consultation. No printing required.	As per intervention group	Baseline–6 months‡

*Based on the Template for Intervention Description and Replication (TIDieR) guidelines.⁴⁵

†Graphical summaries provided to child and parent participants and entered into medical records at the end of the study.

‡Post-baseline.

§Children with ulcerated haemangiomas may receive intervention more frequently.

BBSIP, Brisbane Burn Scar Impact Profile; ePROMs, electronic PROMs; PedsQL, Pediatric Evaluation of Quality of Life Inventory; PROM, patient-reported outcome measure.