TABLE 3.
An overview of the type of support, definition and number of patients reporting it (N = 28).
| Types of support | Definition | N = 28 n, % |
| Lay caregivers | ||
| Instrumental support: | Tangibly helping patients through taking relevant actions: | |
| For daily living | Providing support relevant to maintain daily lives of patients, including driving, cooking, getting groceries, and fulfilling daily practical needs | 16, 57.1% |
| For financial matters | Supporting patients with expenses related to alloHCT treatment | 4, 14.3% |
| For medication intake | Supporting patients with medication-related tasks, including taking medications, reminding of doses, refilling, and picking up the medications | 26, 92.9% |
| Emotional support | Supporting patients by expressing words of encouragement, empathy and caring | 11, 39.3% |
| Informational support | Lay caregivers were not the primary sources of informational support, but they helped as memory facilitators and conveyers of information from the healthcare providers | 1, 3.6% |
| Ambivalence about receiving support | Support attempts that were not perceived as helpful or relevant to patients | 7, 25% |
| Healthcare Providers | ||
| Informational support: | Providing relevant information about survival and self-care after discharge | |
| Medications | Any relevant information about prescribed medications, including their functions, dosing information, side effects, and how to take them | 23, 88.5% |
| Self-care | Information relevant for self-care (other than medication intake) included guidelines for nutrition and hydration | 6, 23.1% |
| Support for medical needs | Helping patients practically to fulfill their medical needs through relevant actions (e.g., refill medications on time), which often made patients feel emotionally supported and cared for | 18, 69.2% |
| Emotional support | Providing words of encouragement, making patients feel cared, which contributed to a trusting relationship between healthcare providers and patients | 9, 34.6% |