TABLE 3.
Key themes from semistructured interviews
| Themes | Illustrative Caregiver Responses |
|---|---|
| Legacy | “This webcast made me think about how where people come from influences the choices they make.” “Legacy to me is looking at what I’ve done, and what I’ve gotten most from this caregiving role. I hope others will see that and understand that even though it’s a hard time, there are a lot of positives you can take from it.” |
| Choice | “This webcast reminded me that I can decide how I want to react to being a caregiver. I think a lot of people forget that they can control how they feel about something. It helped to remind me that I have the power to choose.” “Helped me to stop and think about how I react to things.” “This webcast made me think about why we react the way we do. I realized based on what I’ve watched other people do that I had this unrealistic expectation of myself. This webcast helped to put things in perspective about what you can and cannot control.” |
| Creativity | “I liked the idea that we have the ability to create something out of what we think is nothing, that’s pretty cool.” “This webcast reminded me to take responsibility for my own life. If I don’t take care of myself, how can I take care of my son?” “I appreciated the concept that I can’t allow guilt to take away from my joy.” |
| Connectedness | “Showed me how we connect with the world around us in more ways than just relationships with other people. Sometimes it means connecting with nature or other creative expressions that you enjoy. This keeps us grounded and healthy.” “This was an interesting concept of being able to achieve transcendence without any effort. It showed me how to use my senses to achieve this.” “I enjoyed the nature aspect of this concept. I have always felt at ease and connected outside, and this concept helped describe this feeling I’ve always had.” |
| Perceived strengths of the workshop | “This intervention is helpful because it will let others know they are not alone.” “I’ve changed my lifestyle and have started thinking more about me and my health, and how that helps me help my loved one.” “It brought up things I was holding back or holding down. Participation helped bring things to the surface and it was better for me to deal with them.” “Program was a great source for information, and a place to find meaning in my caregiving role.” “The biggest lesson I learned from these webcasts is the importance of reaching out for help when you need it.” |
| Perceived weaknesses of the workshop | “I would have liked a discussion surrounding loss of interpersonal relationships and support systems.” “Every day is a rollercoaster; I am just too overwhelmed to participate.” “Not all caregivers were actively participating in the discussion boards at the same time; this made it difficult to interact.” “It is hard for caregivers to be away from the patient for a fixed period of time.” “I would have liked discussion boards to be broken down by diagnosis or relationship to patient.” |
| Accessibility of workshop | “The technology was easy for me to use considering I have no computer skills.” “Reminder emails from staff with the actual webcast links would have helped me navigate a little quicker.” “The language used on the website was clear and easy to comprehend.” “When I first logged on I was a bit confused. But once I spoke with the research assistant I was able to navigate the website easily.” “I wish the website was more accessible on my smartphone.” |