Table 1.
Sociodemographic variables and clinical characteristics of study subjects. Descriptive statistics for each sample
| Variable | Sample 1 | Sample 2 | Sample 3 | Sample 4 |
|---|---|---|---|---|
| n = 9 | n = 192 | n = 73 | n = 53 | |
| Mean(SD)/N(%) | Mean(SD)/N(%) | Mean (SD)/N(%) | Mean (SD)/N(%) | |
| Age (years) | – | 33.0 (10.5) | 30.1 (9.2) | 32 (9.7) |
| Age at diagnosis (years) | – | 6.1 (12.3) | 3.1 (5.9) | 3.5 (6.8) |
| Sex | ||||
| Female | 5 (55.6) | 111 (57.8) | 38 (52.1) | 28 (52.8) |
| Male | 4 (44.4) | 81 (42.2) | 35 (47.9) | 25 (47.2) |
| Further education* n (%) | – | 153 (79.7) | 52 (71.2) | 40 (75.5) |
| Professional status n (%) | ||||
| Workers | – | 117 (60.9) | 40 (54.8) | 25 (47.2) |
| Pensioners | – | 4 (2.1) | 0 (0) | 0 (0) |
| Other people without activity and students | – | 71 (37.0) | 33 (45.2) | 28 (52.8) |
| Weight (kg) | – | – | 57.3 (11.6) | – |
| Height (m) | – | – | 164.9 (9.1) | – |
| Body Mass Index (kg/m2) | – | – | 20.9 (3.2) | – |
| Related disease (n, %) | ||||
| Diabete | – | 52 (27.1) | 25 (34.2) | 20 (37.7) |
| Others | – | 30 (15.6) | 10 (13.7) | 6 (11.3) |
| Distance 6MWT (meters) | – | – | 607.2 (114.7) | – |
| FEV1 (%) | – | – | 60.8 (23.7) | – |
| FEV1 (L) | – | – | 2.1 (1.0) | – |
| FVC (%) | – | – | 83.6 (21.2) | – |
*Including university or high school