Table 1.
Comparison between Regional Health Information System of Friuli Venezia Giulia and clinical electronic chart records from our Hospital Clinic
| AAV patients | Administrative healthcare databases | Clinical databases | ||||
|---|---|---|---|---|---|---|
| Residents in Friuli Venezia Giulia | Residents in the province of Udine | Rheumatology Clinic of Udine | ||||
| Period of observation | 2013–2018 | 2010–2018 | 2010–2018 | |||
| Mean (SD) or N (%) | ||||||
| N. Pts. AAV | 103 | 57 | 58 | |||
| Disease diagnosis (GPA; EGPA; MPA) | 40 (38.8%); 39 (37.9%); 24 (23.3%) | 20 (35.1%); 21 (36.8%); 16 (28.1%) | 30 (51.7%); 19 (32.8%); 9 (15.5%) | |||
| Mean age | 55.1 (16.2) | 54.5 (17.5) | 57.8 (14.3) | |||
| ANCA positivity | 76/103 (73.8%) | 44/57 (77.2%) | 47/58 (81)% | |||
| N. hospitalizations | 285 | 126 | 82 | |||
| Hospitalization rate (per year) | 57 | – | 10.3 | |||
| Pts. with at least one event (hospitalization or death) | 74/103 (71.8%) | – | 47/58 (81%) | |||
| Pts. with ≥ 2 hospitalizations | 55/74 (74.3%) | – | 18/47 (38.3%) | |||
| Hospitalization for disease itself | 119/285 (41.8%) | 60/126 (47.6%) | 56/82 (68.3%) | |||
| Hospitalization for infective disease | 26/285 (9.1%) | – | 9/82 (10.9%) | |||
| ESRD | 10/103 (9.7%) | – | 5/58 (8.6%) | |||
| Death | 7/103 (6.8%) | 4/57 (7%) | 6/58 (10.3%) | |||
| Mortality rate (per year) | 1.4 | 0.5 | 0.75 | |||
| GPA | EGPA | MPA | ||||
| Estimated cost per patient-year (€) | 5199 | 2329 | 4771 | |||
| ANCA + | ANCA- | |||||
| Estimated cost per patient-year (€) | 7058 | 2559 | ||||
AAV ANCA-associated vasculitis, ANCA anti-neutrophil cytoplasmic antibodies, ESRD end-stage renal disease