Table 2.
The selection process of relevant PROs for patients with an aSAH
| PROs | Identified from literature (L) or added after interviews with healthcare professionals or patients (P) | Final PROs used in the SOS-SAH |
|---|---|---|
| Fatigue | L | Yes |
| Pain / headache | L | Yes (headache only) |
| Mobility | L | No |
| Self-care | L | No |
| Vision | L | Yes |
| Language | L | Yes |
| Upper extremity functioning | L | No |
| Sleep disorders | L | No |
| Problems with sexuality | L | Yes |
| Cognitive functioning | L | Yes |
| Personality change | L | Yes |
| Depression | L | Yes |
| Anxiety | L | Yes |
| Posttraumatic stress disorder | L | No |
| Work and productivity | L | No |
| Family roles | L | No |
| Social roles | L | Yes |
| Smell | P | Yes |
| Hearing | P | Yes |
| Taste | P | Yes |
| Hypersensitiviy to stimuli | P | Yes |
| Degree of recovery | P | No |
L: literature; P: healthcare professionals or patients; PROs: patient-reported outcomes; SOS-SAH: Questionnaire for Screening of Symptoms in aneurysmal Subarachnoid Hemorrhage