Table 3.

The functionalities of the MyPal Carer app offered to the child’s parents

	Functionality	Description
R1	Patient QoL reporting	Proxy reporting of the QoL for the patient using an electronic implementation of the validated PedsQL questionnaire. Older patients will be asked to complete the questionnaire directly in the MyPal Child app. This is linked with an outcome measure of the study and is reported once per month.
R2	Parent QoL reporting	Reporting of the QoL of the parent using an electronic implementation of the validated EQ-5D-3L questionnaire. This is linked with an outcome measure of the study and is reported once per month.
R3	Satisfaction with care reporting	Reporting of the satisfaction with received care using an electronic implementation of the validated PATSAT-C33 questionnaire. This is linked with an outcome measure of the study and is reported once per month.
R4	Disease impact on family scale reporting	Reporting of the impact of the disease on the family using an electronic implementation of the validated Impact on Family Scale questionnaire. This is linked with an outcome measure of the study and is reported once per month.
R5	Patient Symptom Reporting	Proxy reporting of symptoms for the patient using an electronic adaption of the SSPedi/Mini-SSPedi questionnaire. Usually patients will be asked to answer questions with regard to symptoms directly in the gamified app.

QoL, quality of life.