Table 2.

Age, diagnosis delay, organ manifestations and prior diagnoses

Respondents’ characteristics	Value
Age at diagnosis (in years), median (IQR25–75) (data availability: n=4184)	30 (22–40)
Diagnosis delay (years), median (IQR25–75) (data availability: n=4154)	2 (0–6)
Within first year of first symptoms onset, n (%)	1102 (26.5)
Within 2 years, n (%)	1979 (47.6)
Within 5 years, n (%)	2883 (69.4)
Within 10 years, n (%)	3492 (81.1)
Disease manifestations, n (%) (data availability: n=4298)
Joints	3515 (81.8)
Skin	2551 (59.4)
Muscles	1787 (41.6)
Kidney	1290 (30)
Bloodstream (cytopenia)	1173 (27.3)
Lungs	767 (17.8)
Heart	731 (17)
CNS	696 (16.2)
Muscles	1787 (41.6)
Prior diagnosis before that of SLE, n (%) (data availability: n=4275)
Psychological or mental disease	388 (9.1)
UCTD or MCTD	293 (6.9)
Fibromyalgia	254 (5.9)
Sjögren’s disease	207 (4.8)
Antiphospholipid syndrome	104 (2.4)
Other diagnoses (non-autoimmune or rheumatic)	724 (16.9)
Other autoimmune or rheumatic disease	605 (14.2)

MCTD, mixed connective tissue disease; UCTD, undifferentiated connective tissue disease.