Table 1.

Additional quotes from focus groups regarding their shared decision-making (SDM) experiences

Themes	Representative quotes
Prior negative clinical decision-making experience with providers	“They don’t want to listen to me.” “Some of them don’t really listen. They tell you how they feel and what they think is best for you and I don’t agree with that.” “They want to give it [medicine] to you because the pharmaceutical companies are pushing it.” “My knee … It’s like my ortho is making money … I’m buying his house. You know what I mean? He’s buying a house with my money, you know?”
Patients preparing to engage in SDM	“But you have to be an informed patient. You’re supposed to find out for yourself you have to be informed about it. You well, before you go to the doctors then basically you know what you’re going for. Before you go back to the doctors, well this is what I do, I get on the computer or do stuff with doctors in my family.” “Like I myself recently had blood work done and the doctor called me back and told me, you know, the results of the blood test. But I thought about it afterwards but I had more questions, and I called him back and asked … and I went online.” “A couple years ago when I had my gallbladder removed, I actually went online. The internet is great, I actually went online and saw the actual procedure, so this way it kind of calmed my nerves knowing what was going to happen to me, and it helped me out a lot.” “I have this paper that I give every doctor, that I show when I go in, to alleviate, the fact that I’m allergic to it, what I can take and what I can’t take, and it saves a lot of time and a lot of pressure on me and the doctor.” “Like she said, a lot of people don’t have [Internet] access.” “You have to realize that that the internet to some people is a bill.” “Everyone doesn’t have computers, so you still have to give little pamphlets.” “The doctor’s offices is a good place [to access to pamphlets].” “Lots will be riding on the bus to go to our doctor’s appointment and then that could, you know, you’re thinking about your medications [and questions].”
Challenges encountered during the decision-making process	“It [using laymen’s terms] makes them [patients] know what you’re talking about.” “Because you’ve got older people, older people are not in the internet. Like me, I’m not in the Internet. I’d rather read my stuff.” “The pamphlet that I did look at, no I don’t really completely understand it. So I think they need to put it a little bit more in layman’s terms instead of doctors terms, for say. And they need more [information], so I can know more.”
Patients’ expectations of decision aids	“You could probably get a little bit more info or a little bit more detail.” “The [hospital name] gives you papers instead. They tell you almost about every drug interaction that you take with.” “You just put the foods there that are at risk and not only, you get what I mean? The foods that would act. … Put the alcohol, the grape juice, all of it.” “(I want to know) What is this going to do to me? Am I allowed to this with food? Is it going to mess with my kidneys, is it going to do this, is it going to do that?”